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Descent is not always due to stretching the envelope; for instance, a necessary life saving surgery can precipitate a descent. We have this in our family; after 7 GI haemorrhages, a surgery was required to remove the problem, and that brought on a descent to the worst circle of hell, from which...

Thank you Rosie for an excellent description. I would have to say that the last paragraph, where you describe severe ME is what I am watching daily here at home. There is no remitting of symptoms whatsoever, ever. Upon lying still like a statue the symptoms may go down, but they never abate...

Thank you for posting all this; thank you. And now what? Permanent damage? What do we do? A class action suit? It would be very interesting to know how many people with ME took Cipro and its relatives. This illness has decimated a large swath of young people.

Our family member was given fluoroquinolones for cdifficile.She was never again ‘ normal,’ But the question is: can one prove this antibiotic destroyes the health of so many young people?

Many MS patients complain of horrid side effects of copaxone.

Dear strategist, I agree with your two posts. I have been worried that not enough brilliant immunologists are on the teams looking at this. And this disease will need brilliant minds, the sort that worked on AIDS. I have no medical background, I just observe our family member. It is clear to me...

Yes, indeed. The tragedy for the suffering is that Dr Systrom is totally new to this illness. And it will take him some time to learn it. And doing this mestinon trial is not encouraging, because it is money wasted when the other issues highlighted need urgent attention.

I am worried, as I keep repeating, about mestinon. This medication was used for ME by Dr Teitelbaum and Dr Holtorf some 20 years ago, if not more. They ran these Fatigue-fibromylagia clinics. Many ME patients were unable to tolerate this medication. So, I just find it very discouraging that the...

Yes, I absolutely agree, there just isn't a detailed enough attention to the sequence of events; and unless this is done, we will continue to sit in a muddle. But who out there is going to do this?

Here then is a basic question: if we do not know if this severe problem is immune or autonomic control driven, why can we not find out? Is it that at this point there are no possibilities for distinguishing, or is it that the work has not been done? Thanks

Do we know if the OI and orthostatic hypotension in ME is due to a) heart/circulation problems, b) adrenals, c) neurological, d) vascular? Forgive the pedestrian question, but can it be determined what the hypertension is due to at this point in time? And why is it that the medications I listed...

Dear Erikmoldwarrior, The whole lecture is not on that clip; just the introduction. I no longer know what to think about this volatile disabling disease. Mold is hard to be rid of too, if it is in the body. Many CFS patients have high mercury, and that is a nightmare to shake, if not impossible...

What are the solutions for this orthostatic hypotension? We are unable to find one, despite having our beloved family member try: salt tablets, salted water, large volumes of herbals tea, licorice, midodrine, mestinon, florinef, compression stockings, abdominal binders. Nothing is working. The...

Why can this "particle" not be captured and examined in brain cross sections, or in tissue, or blood? So much research has gone into CJS and other prion diseases in animals, and humans.

Thank you Ben for doing the interview. Some of things Dr Davis suggested he was going to do look absolutely brilliant. But they all will take months if not years. He really is an extraordinary person in every way, from his intelligence to his empathy to his sensitivity. I am also wobbling...

Looks like there was a small study on vesicles done in Spain. I wonder what @Jonathan Edwards (Dr.)and others make of this. Thanks. These vesicles are the ones I believe Dr Davis is targeting with the nano needle, if I am not mistaken. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5912186/

Thank you very much for once again pointing this out. But if some/many (?) scientists are sloganeering and there is lots of "BS" and "clutching at straws" this then augers very very badly for all of us sitting at the edge of our chairs hoping that there will be some breakthrough for our...

I am sure severe chronic stress has impact. However, I just want to remind folks that so many people have spent years in the gulag, undernourished, doing hard labour, and they did not develop ME. The same holds for those souls who survived the extermination camps. Or the same holds for folks...

Dear Scott You are really an angel doing all this work; thank you so much. My daughter's whole nightmare began with errors. She had a pilonidal cyst, which was opened at Women's college. The doctor did not give an antibiotic (important considering the area), or adequate pain killer. The cut was...

Dear Landsbergen, IN your post you say "If that toxic is what I think it is it would fit with the fact that levamisole helps me to improve." Perhaps I missed some earlier posts of yours, but what toxic do you think it might be? And Levamisole is a cancer drug, and yes, it is not used anymore...