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What I can't find is any indication the GWI trial has begun. We've all seen these interviews where Dr Klimas says she has the cash and will start the trial, but nothing more has appeared. Yes, she does say the diseases manifest differently after exercise, but she seemed to say the symptoms are...

Dear Forbin I do appreciate your detailed response. I saw another interview with Dr Klimas (can't find it anymore) where she is suggesting that there are enough similarities between Gulf War Illness and ME for her to consider using the GWI protocol on ME patients, at some point in a trial, if...

Thanks for posting Dr Klimas. What is the name of the medication she says was given? Couldn't understand her.

What is this company? Please let me know.

Is there any way you, Dr Edwards, are able to toss this new idea around with the researchers doing studies? It would be interesting to hear what they say? I understand research works at its own pace, but there are some young people who are suffering horrifically.

Then thank you dear Woolie. Translating is not easy. I know what it requires. And so thank you all because you are also challenged by your illness.

Thank you very much for all your hard work Kalliope. Most interesting talk and most interesting physician. Oh when, when will they crack this?

Thanks for the link. Is there anyone who cares to explain what the implications are of this "thickening" or even how this can arise, or if it is thickening due to inflammation. Thank you.

Thanks to you Andy; you were delightful. Thank you also to Ron and to Dr. Montoya. What a brilliant project this is! Absolutely urgent! Everyone's comments are right on. This doctor is appealing, humane, compassionate and highly intelligent. His understanding of the high degree of suffering...

Thank you. And I gather there is nothing that can be taken to neutralise the lactate?

What meds is she using???

I saw an interview with Dr Klimas ( easy to find) and she states that in dec 2017 she is doing a human trial. She is using gulf war patients and she says they present much like ME patients.she has cash because it’s gulf war illness. I tried to learn what drugs she is using and could not find out...

and some doctors have suggested lots of salt in order to keep the BP up in ME

Dear Dr Edwards You say: If the hypotheses is on the right rack one would want to try to identify the faulty signal pathway and reverse it. Who is investigating these potentially faulty pathways. Who is involved in this kind of research? And do you think that this is an old illness or...

What do you mean by degenerative? Do you mean the severity of symptoms increases?

If that thesis is that an acute episode triggers some shift in metabolic control, then the question is: can this metabolic control be localised, or repaired? And this is sounding like cell danger response to me.

thanks for posting

yes, but let us not discount those who have ended their lives because the suffering on every level is just beyond compare

you are more than correct; the situation is outrageous, and I would add cruel. This population of patients suffers in an extreme way;many if not most endure symptoms around the clock, many are confined to their beds; the whole thing is a nightmare, and it's like a bad dream.

Yes, but I should add, that some suffer cold intolerance, and suffer from chills, cold hands and feet, regardless of the temperature.