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Press Release – ANZMES Awards $25K Grant and $10K in Scholarships to Advance ME/CFS and long COVID Research 2024 Doesn't say how many applications they had for the 2 grants and 4 scholarships theoretically available. They only awarded half of those, whether due to lack of applications or due to...

Some more info on the topic of trust vs inc soc that may be helpful (have only been able to skim) First, confirming that no, apparently there's no specified minimum quorum However, the act is interpreted as setting an expectation of a high level of active member engagement, e.g...

Do you think you're reaching an audience outside our immediate bubble? You've created a valuable resource for advocates even if it never reaches anyone else. But it would be great if journalists, politicians or public servants involved in health or support service areas also picked up on it...

Mainly about turning DSQ questionnaires into an online diagnostic screening tool. There's a link to it but I haven't tested it. The screenshots in the paper suggest all the issues with the DSQs discussed elsewhere have been transferred to the app. No surprises there What did surprise me was...

Hearsay from someone who usually knows about these things (not ANZMES), I didn't check (and haven't been able to confirm any source since) Whatever the quorum rules, if you want to influence the change in structure at this stage options seem limited You could try to convince members to vote No...

Re ANZMES becoming a trust, I just learned that the new law for incorporated societies will require Societies to get a significant proportion of their members to attend their AGMs - which just isn't going to happen for patient organisations. Apparently a lot of other organisations currently...

Prof Tate is moving department. I'm somewhat relieved it's only a move. Otago University has been on a ruthless cost cutting mission for a while and I've been worried they'd be kicking him out altogether...

I think a pause on this move to allow for more discussion would be appropriate and any vote should really include a vote on a draft trust deed But, as you say, most likely a fait accompli. The committee said they'll vote for it and if the past is anything to go by few other people will bother...

I don't know what to think about this Clearly the current structure (Incorporated Society) doesn't work very well, on at least two counts 1) there's low engagement from members and the wider ME community, ANZMES say so themselves 2) I also suspect they're hobbled by clumsy processes like...

From an email ANZMES Special General Meeting & AGM on 2 November 2024 Special General Meeting part refers to

Ah, but 'stress granules' is so much more memorable than 'liquid-liquid phase separation condensates' (and if you're hoping people will stop following fads and fashions and jumping on band wagons, I've bad news for you...) Ok, so the following thought experiment is firmly in 99.99% likely to be...

Not quite how I expected this thread to go :rofl: Maybe a moderator could change the title - I can't seem to do this - to indicate this isn't about ear seeds or some other such nonsense, maybe add something like (actual cellular biology term) after stress granules But yes, stress granules is a...

These stress granule thingies have been following me like a bad smell these last few months. First they popped up as a side remark in one podcast, then in another. And now again in Philip Ball's book How Life Works: A User's Guide to the New Biology*. So third time round I thought I'd better...

That's about sums it up. It's not about what should or should not be discussed, only which whats should be discussed where and when. There is a time and place for almost everything but that doesn't mean almost everything should go into the intro section This might be part of the problem? Nobody...

Where I'm coming from is not that fatigue isn't a huge issue - it very clearly is The issue in the research context is that fatigue is so spectacularly non-specific that the past - and present - hyperfocus on fatigue hasn't been getting us anywhere. That lack of progress alone is a sign it's...

So as not to take this thread too far off topic I've made a separate thread for it. Hopefully somebody there will be able to suggest some good general reviews suitable for linking to. https://www.s4me.info/threads/how-to-write-a-good-introduction-for-an-me-cfs-paper.40017/

It is my unscientific gut feeling that there is a tradition of writing the introduction sections in the ME field that differs from other fields in unhelpful ways. With few exceptions ME papers start their intro section with a lengthy and detailed description of ME, citing all manner of...

Thank you @Chris Ponting, @Simon M, Sjoerd, Ava, Julia, Amanda, Nima and Gemma :party::party::party: Some suggestions: For the purpose of this particular paper I would suggest simply stating that more females than males have an ME/CFS diagnosis. It's not relevant here whether it's 3:1 or 5:1...

Thanks @Trish (and anyone else who might have contributed to this clearly argued letter - I haven't been able to follow the process in detail). I hope it won't be met with the sort of defensive reflex we've encountered so often but that the letter will be read and taken on board as the...

Is undergoing fMRI similar to standard MRI where you're bombarded by ear-protection-defying noise, and the machine tries to cook you from below while at the same time freeze-drying you from above? If so, could some of the recruitment of more brain regions found here and in other fMRI studies be...