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The abstract is incomprehensible, sorry. It makes me think that the full text is not worth reading.

The recovery of physical strength and stamina will continue for years. People might begin with short walks and more household work, then begin leaving the house and eventually rediscover the joy of outdoor activities and sports. People might have posture problems due to lying or sitting a lot...

One needs to look at the bigger picture and not just at people's attitudes at one point in time. Attitudes can change over time, with experience and in response to events. How people feel about a label or approach may not reflect how they will feel about it later, when they have experienced what...

I've read that people with ASD, compared to the general population, have increased risk for a wide variety of other health problems. ASD tends to come with comorbidities. It wouldn't be surprising if there was an association between ASD and ME/CFS. My limited experience with the high...

What psychosomatic ideology is becoming is an ideology in the service of inequality. Its purpose is to justify withdrawal of support for a marginalized group, and it attempts to achieve this by attacking the credibility of that group as testimonials to their own illnss and by claiming that...

Maybe it's up to us patients to create an alternative to the psychosomatic ideology. One where the relationship to the disability and symptoms is accepting and not minimizing/denialist. Where the advice given is practical advice on how to best life with the illness and manage symptoms, without...

My father is a doctor and he abandoned me because of psychosomatic theories that claimed my symptoms would get worse if they were taken seriously and attention paid to them, whereas deliberate indifference would help me get better. Anyone who is sick is desperate for help and this is easily...

The question is whether this will benefit patients and reduce stigma for them. For example, I find the idea that I'm continuing to suffer from symptoms and disability because I'm somehow failing to manage my emotional problems (this is roughly the idea in some models of unexplained medical...

I too have a suspicious variant in SLC25A5. What I learned from analyzing my own genome is that we all have tens of genetic variants that will be considered pathogenic by variant effect prediction tools. So it's not difficult to find variants that look like they might have something to do with...

Are they regularly catching people trying to game the system, or have they devised a complex system of sometimes dubious beliefs about what disability and mobility issues look like? In one's own imagination, it's easy to arrange things so that you're successful.

Exertion beyond a certain limit does seem to increasingly cause "sympathetic nervous system activation" during the same day. This can also be caused by being upright for too long or too much socialising. It feels like tired-but-wired and returning to a relaxed resting state is impossible. The...

If low mood gets better with bed rest then it's a manifestation of PEM.

I recently did 2 high activity days in a row and ended up with persistent burning muscle pain on the following days, then low energy to the point iI hardly did anything, and difficulty tolerating any stress and poor mood in response to mildly unpleasant events. I also remember a long and...

An alternative to energy failure might be: I feel exhausted and doing activity becomes uncomfortable due a specific sensation that is very hard to overcome for long. That sensation feels like I'm causing or risk causing harm to myself if I continue. It is effective at limiting activity. This...

This is just the talking therapy industry attempting to create a market for talking therapies by trying to persuade the public that poorly understood medical conditions are psychosomatic and therefore a valid target for talking therapies. When the medical conditions are poorly understood it is...

After reading the article and the supplementary information I'm still not sure what exactly this approach consists of. It seems to mix a wide variety of ideas and reads more like promotional material than a technical document. Also, I wonder why acceptance is good when it's proposed by a...

I think this way at looking at rehabilitation is useful approach and I've been looking for something like this. Although I see it more as an adaptation strategy than rehabilitation.

Masking or camouflaging in autism is what we in this community call faking being well.

I agree with this. I don't consider myself to have POTS but it feels like one significant barrier to continued activity is that feeling of decreased blood flow to the brain. I know this from when I had real POTS and more marked OI. It's the same sensation. It seems that the body gets tired after...

I think that a good starting point is the idea that you understand how the illness works and its interactions with other things better than anyone simply because you can observe them all the time, while other people, including doctors, often struggle with this because the illness is subjective...