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Yeah, member of the blocked by Michael team. Seems his Twitter charm offensive may be over. Details viewable in another browser or in stealth mode, of course.

That is interesting, thank you.

As he is someone employed by the Priory group to provide CBT for ME, I hope he declared his interest.

I think I have now succeeded in shifting this argument. The ICO has said in her latest submission to the Tribunal that QMUL must now show either that it is impossible to provide patient-level data without the input from someone who took part in PACE, or that a QMUL statistician could provide the...

No, really, Barry, it's important we get this right. The raw data are safely stored and locked up in a cabinet. Nothing has been lost or mislaid or anything like that. The question is around a legal definition only.

May be of interest. https://www.nature.com/articles/s41586-018-0238-4 Abstract Viral infections continue to represent major challenges to public health, and an enhanced mechanistic understanding of the processes that contribute to viral life cycles is necessary for the development of new...

I've done a few tweets on it, if anyone is interested.

This study is interesting, and so are the responses by Wessely and Sharpe. https://www.amjmed.com/article/S0002-9343(99)80332-5/pdf

Yes, this is something I have long argued: merely by taking patients from the clinics, they were skewing the sample. Those clinics were set up to provide CBT-GET. The sample ignored people like me who knew there is no treatment.

It's good that Carol is raising the issues about PACE, but the data have never been lost. No one disputes the raw data are locked securely in filing cabinets in a QMUL-operated building at St. Bartholomew’s Hospital. The question raised by my FOIA request is whether QMUL has the means to...

It is really good, Graham. Thanks, and well done.

I know the minutes for the first couple of meetings were drafted by Sharpe. It's possible he did them all, though it's not publically (sic) known. He uses 'equipoise' in his (false and misleading) COI statement.

It says on the page re CBT-GET 'It’s very important to note that there is no published research into the effectiveness of GET and/or CBT for those who are severely affected by M.E.' FINE wasn't explicitly CBT-GET but 'home delivered pragmatic rehabilitation—a programme of gradually increasing...

I think there should be elections. AfME and MEA should organize these elections but should have no other role in selecting the patient reps.

My understanding is that membership of the PAG for MEGA was confidential. I do know some quit that group. Again as far as I understand, the remnants of the PAG formed the patient representatives to the CMRC. I don't know whether that's supposed to be confidential or not. In any case the CMRC...

I presume Christine Laennac and Jane Whittaker are the patient representatives. I presume also that Jane Whittaker is the one who liked 'Developing Magic: NLP Training' (albeit in 2011) (see attached). Isn't it time patient representatives were chosen by... patients? Shouldn't they be elected...

Obituary of ME denier in Times today. Nothing on the illness, so maybe not of great interest. https://www.thetimes.co.uk/article/dr-thomas-stuttaford-obituary-jljgnnbrx

Here is a Dropbox link for the file Lucy has created. https://www.dropbox.com/s/jn4fc87v9uuy8ja/Correspondence%20from%20DWP%20about%20ME%20in%202005.pdf?dl=0

Yes, that's how they came. There is a bit missing. I could go back and ask for a better copy, but it doesn't look to me as though there is anythng important missing. Next time I get some stuff, I'll ask them if they would try to do a better job.

Last from DWP. This is the briefing from AfME.