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Post on the ME Association Facebook page. "Oxaloacetate - a new treatment for ME/CFS and Long Covid? I have been at the annual IACFS conference in (virtual) America for the past three days One of the presentations in a Treatment session on Saturday afternoon came from Dr David Kaufman - who...

An Update On The Scottish Implementation Of The NICE Guideline

An Update On The Scottish Implementation Of The NICE Guideline The Scottish Government has made the decision that the NICE guideline will be implemented by updating the Scottish Good Practice Statement (SGPS) to reflect the changes in the guideline. The SGPS was published in 2010 and provided...

Text of the latest email sent out. You’re invited to the next DecodeME webinar. This webinar will be a chance to hear updates about the study and more about the DecodeME questionnaire. You can also have your questions answered. It’s on Wednesday 3rd August, 3 - 4pm on Zoom and Facebook...

From search results I see for research papers published, there does seem to be a lot of fibromyalgia papers published by Spanish based researchers which seem to focus on what we would consider "patient blaming" concepts.

Full title: Relationship between the severity of persistent symptoms, physical fitness, and cardiopulmonary function in post-COVID-19 condition. A population-based analysis Abstract The aim of this study was to determine the relationship between physical fitness, cardiopulmonary function and...

Key Points Question What are the rates, clinical settings, and factors associated with documentation of care related to COVID-19 at 3 or more months after acute infection? Findings In this cohort study of 198 601 persons with a positive SARS-CoV-2 test, COVID-19 care was documented in 13.5%...

Abstract Background. Fibromyalgia syndrome (FMS) is a chronic musculoskeletal pain condition characterized by widespread pain, sleep problems (i.e., insomnia and unrefreshing sleep), fatigue, cognitive, and emotional difficulties. Although pain has been proposed the factor mostly impacting in...

"Because of the widespread occurrence of CF [chronic fatigue] impairment and the possible side effects of available drugs, non-pharmacological treatment, specifically physical training, can be an excellent strategy for CF treatment in TAK, as observed in other conditions [40]." Other conditions...

Abstract Objectives Several studies have shown not only a high prevalence of fatigue but also a reduction in health-related quality of life (HRQoL) in patients with rheumatic diseases. Owing to insufficient research in this area, we aimed to assess the prevalence of fatigue and its contribution...

Thread here, Long COVID and the cardiovascular system – elucidating causes and cellular mechanisms in order to (...), 2022, Gyöngyösi et al

Summary of days 1 and 2 from ME Research UK https://www.meresearch.org.uk/2022-iacfs-me-conference-days-1-and-2/

Abstract Objective Studies suggest a large number of patients have persistent symptoms following COVID-19 infection—a condition termed “long COVID.” Although children and parents often report cognitive difficulties after COVID, very few if any studies have been published including...

Abstract Background The number of individuals recovering from severe COVID-19 is increasing rapidly. However, little is known about physical behaviours that make up the 24-h cycle within these individuals. This study aimed to describe physical behaviours following hospital admission for...

To be honest this was one of my thoughts - is there any evidence of a widespread issue with getting ME papers published? Another thought I had was "who has the time and money available to set up and run it?" - not that I know how much time and money would be needed but I assume that some of...

Given that this tweet which asks "Just wondering about setting up a journal for #MyalgicEncephalomyelitis to provide a space for #ME research to be published. Is this already available?" is getting a lot of engagement, I thought there might be value in a thread for the question.

Link to original tweet for anybody yet to be blocked by her.

A role for bacterial histamine in abdominal pain Gut bacteria have been implicated in the genesis of chronic pain disorders; however, the underlying mechanisms remain unclear. In new work, De Palma and colleagues show that histamine, a known neuroimmune modulator, is produced by gut bacteria and...

Open access, https://www.nature.com/articles/s41586-022-05128-8

His analysis is here, https://paolomaccallini.com/2022/07/27/tryptophan-metabolites-in-cerebrospinal-fluid-of-me-cfs-patients/