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ABSTRACT Objectives Motor functional neurological disorder (mFND) is a condition where individuals may experience difficulties such as tremors, gait impairments, and paralysis which are not explained by identified structural damage to the brain. Studies on chronic conditions have suggested that...

Currently, we are facing a new manifestation of functional neurological disorder presenting with functional Tourette-like behavior (FTB). This study aimed to show characteristics of this phenotype presenting as an outbreak of “mass social media-induced illness” (MSMI) and to explore predisposing...

Full title: Reducing fatigue in Long COVID-19: A feasibility study of a self-help intervention to reduce fatigue-related symptoms among patients in general practice Who is funding the study? The study is funded by Fund into Osteopathic Research Into ME (FORME) (UK) a charity to help patients...

I’m not sure when the name “living systematic review” was coined, but it was fleshed out in an article in 2014 by Julian Elliott and co. The name was new, though the concept – staying on top of new clinical trials and keeping meta-analyses very up-to-date – has been around for over half a...

A post not about recruitment. Chris, Diana (our project manager) and I met with Theo Richardson-Gool, from the MRC's Integrative Epidemiology Unit at the University of Bristol to discuss how DecodeME have involved the patient voice from the start of the project. Theo assured us that he has...

Trish Greenhalgh on how Long Covid isn't all in the mind...... https://youtu.be/2fXwWF4KoG4?t=1171

Abstract COVID-19 and ME/CFS present with some similar symptoms, especially physical and mental fatigue. In order to understand the basis of these similarities and the possibility of underlying common genetic components, we performed a systematic review of all published genetic association and...

Indeed, including how the authors of this article mention about learning lessons from other conditions but completely fail to mention ME.

Over the last two and half years, the COVID-19 pandemic has dominated headlines around the globe with Long COVID (also known as Post-Acute Sequelae of Covid-19 [PASC]) emerging as a significant health issue. The World Health Organization (WHO) defines Long-COVID as a post COVID-19 condition that...

Highlights • Fatigue is the main sequela of long COVID-19 and needs follow-up. • There are physical and mental manifestations of fatigue in long COVID-19. • This review presents the most used instruments in assessing fatigue in long COVID-19. • Muscle strength, walking, and functional tests...

Full title: Single-cell RNA transcriptome analysis of CNS immune cells reveals CXCL16/CXCR6 as maintenance factors for tissue-resident T cells that drive synapse elimination. Abstract Background Emerging RNA viruses that target the central nervous system (CNS) lead to cognitive sequelae in...

"Philippa Langley, whose search for the remains of Richard III forms the centre of new movie The Lost King, says she was keen to be honest with the writers about her life with ME. Myalgic encephalomyelitis, also known as chronic fatigue syndrome, is a long-term condition which can cause extreme...

Thought this would be useful to post here. With spit kits being sent out to donors some have been asking if a sample being delayed in the post would be an issue. The simple answer is that the likely delay caused by a postal strike is very unlikely to cause any issue. The storage tube contains...

Highlights • COX7A isoforms drive structurally distinct respiratory chains: C-MRC and S-MRC • C-MRC and S-MRC display different bioenergetic properties • C-MRC is favored when the PDH complex is activated, promoting OXPHOS • Metabolic shift toward glycolysis stabilizes SCAFI and the S-MRC...

Full title: Prevalence of medically unexplained symptoms in adults who are high users of healthcare services and magnitude of associated costs: a systematic review Abstract Introduction Medically unexplained symptoms (MUS) is a common clinical syndrome in primary and secondary healthcare...

Abstract We previously hypothesised that Functional Cognitive Disorder is characterised by heightened subjective mental effort, exhausted attentional reserve and metacognitive failure. To test this hypothesis, we administered a colour-word Stroop task in which attentional demand was varied by...

Comparison of these latest figures with the previous figures.

Well, both the Twitter and Facebook posts linked in my post above have a video demonstration of what to do. Also this small selection of feedback on social media seems to suggest that we haven't done too badly in making the instructions as clear as possible. "Received and returned my DecodeME...

Prevalence of ongoing symptoms following coronavirus (COVID-19) infection in the UK: 6 October 2022 1.Main points An estimated 2.3 million people living in private households in the UK (3.5% of the population) were experiencing self-reported long COVID (symptoms continuing for more than four...

$6,917 raised, 25 days left. https://crowdfund.berkeley.edu/project/33528