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Abstract Objectives COVID-19 has infected millions of people worldwide, with growing evidence that individuals with a history of infection may continue to show persistent post-COVID symptoms (long COVID). The aim of this study was to investigate sleep health in an international sample of...

Abstract The ongoing novel coronavirus 2019 (COVID-19) pandemic has had considerable effects on the disability community. As the pandemic has progressed and changed, the manifestations of these effects have differed, and yet the underlying causes—ableism including the devaluation of disabled...

News in Brief posts for w/c 19th Sept. https://www.facebook.com/sci4me/posts/pfbid024rMYoiFXPmTb32vJt5cCuqPmUMidkuYVCUQi7fskvHFnbJZSZkmmr3GMDMSeWRvdl and published papers thread. https://www.facebook.com/sci4me/posts/pfbid02vydwtAgyMdRfXefBqBBrmiB96vwZ2E646PdxNaqWWXKgtmSv92w67DAsYDD7xRJyl

Wow. I can't wait for their next paper, "Everytime we turn on a blue light, we gave people an electric shock. These people have developed, for some reason, a fear of blue lights being turned on. If we convince them not to fear what happens when a blue light is turned on, this will mean they are...

Link to another letter about the study to the journal, Lambrechts and Jacobs, claims to be open access but seems to be paywalled, https://academic.oup.com/brain/advance-article-abstract/doi/10.1093/brain/awac346/6713528 Link to reply from the authors, claims to be open access but also seems to...

Abstract Cross-sectional data indicate that acute SARS-CoV-2 infection increases resting muscle sympathetic nerve activity (MSNA) and alters hemodynamic responses to orthostasis in young adults. However, the longitudinal impact of contracting SARS-CoV-2 on autonomic function remains unclear...

Abstract As of 2022, close to 90 million persons in the United States, 243 million persons in Europe and 585 million worldwide have been infected with the novel SARS-CoV-2 (COVID-19) virus and survived. Estimates vary but suggest that up to 50% may experience long-term sequelae, termed...

Abstract Background Patients with long-COVID often complain of continuous fatigue, myalgia, sleep problems, cognitive dysfunction, and post-exertional malaise. No data are available on EMG recording of evoked myopotentials (M-waves) or exercise-induced alterations in long-COVID patients...

Not that I have any suggestions to give at this moment, but do you specifically need papers about ME/CFS communities or would papers about other communities be helpful as well?

Trial By Error: Brain Publishes Letter About Flawed Study from NYU on ‘Psychogenic POTS’ https://www.virology.ws/2022/09/24/trial-by-error-brain-publishes-letter-about-flawed-study-from-nyu-on-psychogenic-pots/

@Caroline Struthers more evidence that the zombie review is still harming patients.

Paywalled article in New Scientist about this study. Tweets from author, where he also mentions DecodeME.

I assume "mean men" is a mis-translation issue, and should be something like "average man".

Full title: Evolution of the vls Antigenic Variability Locus of the Lyme Disease Pathogen and Development of Recombinant Monoclonal Antibodies Targeting Conserved VlsE Epitopes ABSTRACT VlsE (variable major protein-like sequence, expressed) is an outer surface protein of the Lyme disease...

It's correct in the next mention, "DecodeME" but continues to be "Pointing" until the last mention in the article where it is corrected to "Ponting". "A significant portion of the day was given over to discussion about the role of patient-priority-partnerships and involvement (so-called PPI)"...

The SMC not only deliberately calling it CFS/ME, rather than either CFS or ME/CFS, as used in the paper itself, but also allowing Alan Carson to give his 'expert' opinion...

Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a debilitating disease with an unclear etiology and pathogenesis. Both an involvement of the immune system and gut microbiota dysbiosis have been implicated in its pathophysiology. However, potential interactions between...

Thanks for taking part. Yes, unfortunately this wasn't as clear as it could have been. We have already made changes to the text on the website to try to make this clearer to participants. Technically, yes, it would have been possible but we preferred the simplicity of "health professional"...

"DecodeME participation and criteria for the DNA stage We know how important DecodeME is to people with ME/CFS and we are grateful to the patient community for such a positive reaction to our launch. We have also seen and taken on board the frustration expressed by some who haven’t been asked...

Abstract Previous studies showed that people with Fibromyalgia (FM) suffer from dysautonomia. Dysautonomia consists of persistent autonomic nervous system hyperactivity at rest and hyporeactivity during stressful situations. There is evidence that parameters reflecting the complex interplay...