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I faded out well before the end but will try to catch up with the talks I missed when they are posted later. I thought the conference was very well organised. Every speaker had a clearly stated time slot and they weren't allowed to over run, and the question time at the end of most sessions...

I had written a longer comment including stuff about pacing-up, but it failed to register and I'd forgotten to save it, so I had to start again.

Excellent, I've signed it and added a comment.

I see the authors are based in Bangaldesh, so I assume the study will be carried out there. I hope some clinicians such as Todd Davenport will help them with better information and redesign of the study, though it may be too late. It's so full of flaws it will be useless.

Well, hold the front page, sick people are found to be sick. Who knew? I wish they wouldn't use the phrase 'well being'. We are sick. It smacks of the whole 'wellness' industry, quackery, Goop etc.

Bhupesh Prusty is on now talking about his work on fibronectin. I'm too knackered to concentrate any more, so will have to catch up later.

I share your concern, @Old Monkey, it's a steep learning curve for all of us when we first come across the harmful nonsense that has been inflicted on us. I hope you can avoid the nonsensical deconditioning 'therapy' being imposed on your young caree. The NICE guidelines specifically say therapy...

The email says they will be on You Tube.

Very good talk by Sayoni Das from Precision Life. She showed some analyses of data on ME/CFS from the UK Biobank, and some Long Covid data, and they are looking forward to getting the DecodeME data to analyse.

The second day of the conference is under way. As yesterday, I missed the first part. They are now doing a series on the experience of Long Covid, and stigma.

The graphs are prevalence, not incidence. Given only about 5% recover, even if incidence of new cases is highest in teens to 40's, the cumulative prevalence will be high for much longer.

They are now having a half hour lunch break. During the break they have people with LC and ME/CFS from different countries sharing their comments and experiences. So far the conference is very professionally run, with all talks running strictly to time with a bit of time for questions after...

Just watched Rob Wust. Very impressive. He has learned more about PEM and the difference between PEM and deconditioning in ME/CFS than the BACME and BPS people have learned on 30+ years. He specifically said the role of physical therapists should only be to help pwME stay below their PEM...

This conference is happening now. You have to sign up for it. I don't know whether you can still do so while it's happening. I have just started watching 2 hours into the first day, with Carmen Scheibenbogen speaking. Mostly I expect to catch up with talks when they are posted on the website...

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Which patients are not allowed to attend. I asked. See the BACME thread.

See this thread: https://www.s4me.info/threads/suramin-as-a-possible-treatment-for-autism-me-cfs-and-long-covid.184/ I seem to remember forum discussion didn't find the suramin for autism study particularly convincing.

My father had a post infectious illness in the 1930s. One difference then was that doctors put him on extended sick leave and told him not to do any physical or mental work until he recovered. He had recurrences of what the GP diagnosed as a recurring virus in the 1950's and 60's and again the...

I also am not enthusiastic about using Unrest as a medical education tool. Without discussing the details of Jen Brea's illness, I'd just say her case seemed atypical in some ways, and therefore gives a confusing picture of ME/CFS. The few friends and family who watched it said they saw it more...

To take a very oversimplified example, say in a town of 10,000 people, one person per year gets ME/CFS, average age 25, none recover and they die at average age 75. So on average there are 50 pwME in the town. Each year there's a new pwME aged 25, and a pwME dies aged 75. If incidence and...