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Amazing what rubbish gets produced in the name of science and statistical analysis. The conclusion that the CFQ is valid, reliable, and a suitable tool for measuring general fatigue is, we know, wrong. It's not 'measuring' anything, it's counting responses to random statements of variable...

I have tried a few times over the years watching Gervais. I confess I find what I have seen of his material completely unfunny and sometimes cruel. Maybe I've been unlucky with the bits I've watched.

I think we need to be very careful not to misquote what he said. I've just listened. He says she had previously been a marathon runner before she got sick. When she got sick she did their CPET testing. Then she spent six months doing aerobic training, needing to cut out a lot of other activities...

I think we already have evidence of why GET is a bad idea from the 2 day CPET tests and the average time it took participants to recover to pre CPET level which on this trial was 12 days. For example: Recovery from Exercise in Persons with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome...

I hope you find the doctor kind and helpful, @LisaG. We don't allow members to give each other medical advice, so we shouldn't try to interpret your experiences with the collar, but I think it is something to tell the doctor about if they being helpful.

I think more than 2 successive CPET's on successive days would be far too risky. Reading patients stories of how they collapsed suddenly from one day to the next into years long severe ME after a relatively short time of doing GET, which is less intensive than CPET, I think it would be unethical...

It may be waiting in a slow peer review and publication process.

Yes, I had spotted that. I'll copy the link to David Tuler's article to the harms thread. Edit: I see you have already done so, thanks.

My interpretation of the results is that before treatment the correlation is fairly strong between subective and objective outcomes but by the time the patient has been through the therapy/rehab program they have been persuaded that it should be making more difference to their health and...

Since this study was done at a single time point, any causal attribution of one symptom predicting another is clearly not possible. I remember querying the use of the term predictor on a thread for another paper of similar ilk and being told in this context the word predictor simply means if...

At a quick glance they don't look like the kind of meds that can be over the counter. One of them is given through a drip, and they all have side effects and contraindications. And are probably very expensive.

I hadn't realised CG started her medical career as a psychiatrist before switching to being a GP.

I don't think there's any justification for a clinical trial for any antibiotic for ME/CFS. Antibiotics are over used already, and should be used only for bacterial infections. They don't seem to be considering in their interpretation of their 'remissions' that many pwME report a temporary...

The MEA survey this month is on alcohol intolerance and ME/CFS or LC. https://meassociation.org.uk/me-association-survey-alcohol-intolerance/

The ME Association and ME Research UK announce funding for a study that aims to create a diagnostic test for ME/CFS See this thread: https://www.s4me.info/threads/the-n...ned-on-the-lab-bench.34019/page-4#post-501131

The ME Association and ME Research UK announce funding for a study that aims to create a diagnostic test for ME/CFS See this thread: https://www.s4me.info/threads/the-nanoneedle-salt-stress-test-%E2%80%93-too-good-a-clue-to-leave-abandoned-on-the-lab-bench.34019/page-4#post-501131

For more personal thoughts there is also this In Memory thread in the members only area Maeve O'Neill

Thanks for replying @DMissa. No problem. I don't have the energy or knowledge to look at the detail either, so I'll leave it to others to discuss.

All this shows is counting symptoms is not a helpful or valid way of assessing whether someone has long covid. Surely they should realise by now that this has to be combined with a measure of severity and frequency of the symptoms and impact on ability to function.

So basically they cherry picked a few results with small effect sizes and most of their questionnaires didn't given significant results. The conclusion should clearly be to scrap this treatment as a bad idea and move on. Instead the oh so predictable conclusion of 'potential effectiveness' and...