Search results

I don't think that's a good reason for stopping funding such research. There's so much more that could be sensibly explored, including replication of small promising studies that were too small to stand on their own.

$63,407 97% of the goal and 2 days left. Looks promising.

I certainly agree that their own intramural studies led by Walitt and Nath are a failure and should be discontinued. They have shown themselves unfit to research this area because of prejudices about 'effort preference' and worse. But does Nath also have any say over the amount or direction of...

@cassava7 I'm so sorry to hear you are continuing to have such a difficult time. I wonder whether this post is of any use to you and your doctors: https://www.s4me.info/threads/gastroparesis.3476/page-2#post-535089

@MelbME are you likely to test a comparison group between intravenous delivery of saline etc and the equivalent quantity of the same solution orally? Is there something specific about bypassing the stomach and going straight to the bloodstream?

Good. He had definitely gone rogue some time ago. I could never understand why Karl Morten thought he was a fit and proper person as a research colleague.

Serving up a load of balls. Crossing the line. Underhand...

Oops, sorry, I should have done that sooner. I doubt people only see the OP of this thread, so likely no harm done.

Unbelievable. An NHS 6 week program at a tennis club for pwLC to learn to play tennis while also getting lifestyle advice. This from an NHS that is falling apart from lack of funding and clinicians and they waste money on this. The world's gone mad.

The 16th Invest in ME Research International ME Conference 2024 28 June 2024 Wellcome Genome Campus, UK #IIMEC16 Advancing Understanding of ME: Bridging Research and Clinical Treatment https://www.investinme.org/IIMEC16.shtml Programme IIMEC16 CONFERENCE AGENDA - 28 JUNE 2024 The...

Doesn't appear to be. I'll start one. Edit: UK Invest in ME Research conference, June 2024

To lighten the tone, a BBC article today: Glue pizza and eat rocks: Google AI search errors go viral Quote: Google's new artificial intelligence (AI) search feature is facing criticism for providing erratic, inaccurate answers. Its experimental "AI Overviews" tool has told some users...

I think their crafty way of getting around all the medical ethics and science issues is that they call what they do 'training' not 'treatment'. That puts them in the category more like personal trainers, so not needing any recognised qualfications or evidence.

I note on this public thread that Hilda Bastian's talk page intended for people to be able to ask questions and raise issues about the IAG and the project for developing the new review has come back to life after a 2 month hiatus. A couple of links: Hilda's talk page Members only thread

That was a very worthwhile effort, @JohnTheJack.

I read the article. What it seems to boil down to is, we don't know how to diagnose or treat fibromyalgia, and drugs don't work, so patronise your patients and give them low quality generic GP and therapist BPS treatments and lifestyle advice.

I don't understand what point you are making. What have you tried to warn me about? And why me in particular?

I don't understand why a journalist has to give an example of someone who claims to have been cured in this context, or why you say in your article such anecdotes should be part of the story. Does that mean when you write about GET, explaining the flaws in the research, and saying that there's...

I don't think it's fair to blame Charles Shepherd for what others in the MEA do or say. He's one person, and does a huge amount of good work for the MEA and for pwME. The MEA seems, sadly, to have some less competent people acting on their behalf.

Discussed here: https://www.s4me.info/threads/usa-nih-national-institutes-of-health-news-next-events-may-28-2024.18724/page-22#post-532053