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Thanks SNT Gatchaman for that useful summary. It's interesting and a bit sad to consider your comments in the light of a recent paper from the Otago university research team. While Professor Tate has always been very sympathetic to people with ME/CFS, the hypotheses that have come out of the...

Some more examples of what I'm talking about: ANZMES. ANZMES Preliminary survey findings. (2021). Available online at: https://anzmes.org.nz/ (accessed February, 2022). This statement gives the impression that one in 4 people with ME/CFS suffer severe ongoing impacts as a result of being...

Members' comments here are spot on I think. There's definitely a breathless naivety in the way preliminary findings are stacked up to support what is a pretty vague and handwavy sort of hypothesis. Really it isn't much advanced on the typical circular diagrams the BPS people so often add to...

Some posts about the micro-clots hypothesis have been moved here:The micro-clot finding in Long Covid — implications for the possible aetiology of ME/CFS

On potential complement involvement:

An obvious question is 'did the patients have the symptoms before the vaccination?' - the researchers do seem to have tried to exclude that possibility: Another is 'is the timing of symptoms appearing within a month of vaccination a coincidence'? Could the symptoms actually be related to a...

Here's the thread on that interesting although small study: Preprint: Neuropathic symptoms with SARS-CoV-2 vaccination, 2022, Safavi, Walitt, Oaklander, Nath et al

Link to Amazon page for the book You can rate reviews as helpful or otherwise, with highly rated reviews featured on the main page. Currently, only Jonathan's review is visible to me.

Linking Sarah's post here about SW's involvement in the PACE trial More discussion of SW's involvement in CFS research here: United Kingdom: Science Media Centre (including Fiona Fox)

Der Spiegel article 2022: "Man kann sein Leben verlieren, ohne zu sterben" (You can lose your life without dying)

I found that Chronomag is produced by Alliospharma in France. The researchers are also from France.

The question is, how can we somehow make the authors accountable for their selective use of the data and try to stop papers like these being used to promote products? There's so many of these problematic papers, and we have so little energy. We review papers a bit like other people do the...

Sorry, I should have been clearer about how the review process is working. As someone involved in the last rewrite, I've been asked to provide feedback. It isn't a public review process. I'll use your points here to make suggestions.

The project on young people, the 'good day, bad day' study is a big project funded by the NHMRC in 2020. As far as I am aware, it is underway.

Thanks everyone, great comments. Yes, it's difficult. I regarded the requirement for annual review as a win in the guideline for doctors - it normalises the approach to the illness, it makes it clear that this is a significant illness that should not be ignored. But yes, while doctors still...

In this magnesium study, the unit of magnesium in the tablet was mg, as in a total of 100 mg in two tablets (50 mg x2), or 0.1 g. A standard '0' size capsule can hold about 0.5g of powder, so at most the daily lactose dose was 1 g. In the lactose experiment you refer to, they talk about...

An interesting thought @bobbler. Yes, lactose does seem like an odd choice for a placebo to me. Against the idea that it is that that is causing the mild/moderate stress placebo treatment group to worsen 1. the amount (two tablets) is pretty low 2. the people in the severe stress placebo...

:) A new thread - what it says on the tin. If you have 15 minutes spare, please have a look at these patient information pages that are up for review, and give your feedback: New Zealand: HealthInfo ME/CFS pages - feedback please before 25 May 2022

New Zealand's Canterbury District Health Board's pages on ME/CFS are up for review. I think it must have been a couple of years ago that we got these pages rewritten, and we were very happy with the result, it was a massive improvement. There were of course some things though that weren't...

I think this study shows that * not all people with FM score sufficiently highly on a stress survey to qualify as stressed. So, maybe FM doesn't equal "stress-trouble" * people with FM can have normal blood magnesium, indeed in this trial most did (edit - and their blood levels marginally...