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Higher than normal temperature was an optional criterion in the Holmes et al. (1988) criteria. It is one of the few items in all the sets of criteria I don’t have which led me to question it [i.e. whether it should have been in the Holmes criteria].

Good to see this recognised.

Don’t recall hypersalivation being mentioned in the context of ME/CFS before.

Good to see talk of what might be observed during a physical examination which sometimes doesn’t seem to get discussed (or perhaps I’m forgetting discussion of it?).

Good to see recognition that a patient telling their story might be triggering for them but may not give a good overall picture of their mental health:

Good to see that if Fukuda are to be used, it is recommended they are used in this way:

POTS is a (specific) increase in heart rate without a (specific) decrease in blood pressure (orthostatic hypotension). I have noticed the latter criterion is sometimes forgotten about/not known about.

The incidence rate is ridiculously low, equivalent to 15 cases per million people per year. It doesn’t tally with the prevalence figures in the same sentence.

Overall I liked this, though I think I prefer other documents to highlight to doctors to educate them. But it does have the advantage of having some “status” given the number of authors who co-authored this and it’s from a network. I’m now going to post random extracts for what they are worth.

OMF (and the research they fund) seem not to be tied to any one line of research. So the fact that one (or more) line of research they have previously funded hasn’t led to clear progress doesn’t mean another angle may not work. But if people prefer to fund another research group, feel free...

I think they may have delivered some false hope but also some real hope. Hope for progress from research helps keep me going: it has helped me avoiding ever becoming depressed. Maybe there will be a breakthrough in my lifetime, maybe there won’t be, who knows, but the hope that there might be...

Free fulltext: https://www.mdpi.com/1660-4601/20/4/3477 Non-Pharmacological Therapies for Post-Viral Syndromes, Including Long COVID: A Systematic Review by by Joht Singh Chandan 1,*,Kirsty R. Brown 1,2,Nikita Simms-Williams 1,Nasir Z. Bashir 3,Jenny Camaradou 4,Dominic Heining 5,Grace M...

More from link: A MESSAGE FROM THE TRUSTEES: reMEmber (the Chronic Fatigue Syndrome Society) was founded by Janice and Bill Kent nearly 25 years ago as their response to a lack of awareness of ME and provision for ME patients. Their goal was to educate, raise the profile of ME with health...

Theoretically possible. What I would say might happen more often is they and/or their medical team may get delayed in getting/making some diagnoses because of all the existing symptoms and impairments. Also the patient may have had negative experiences of the medical system or find it difficult...

Thanks. I realise now my message is a little ambiguous: I wasn't expecting it to be done for every DecodeME message.