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I didn’t listen to it all. I didn’t hear mention of ME/CFS at 2:52 but did at 3:29.

Interview on Irish national radio yesterday https://www.newstalk.com/podcasts/highlights-from-the-pat-kenny-show/long-covid-study-findings

“The family hope a world-wide live stream of the funeral service will be available on Kara Jane’s YouTube channel – but they need at least 1,000 subscribers to make it happen. It doesn’t cost a penny to subscribe!” Subscribe at: https://youtube.com/@karajane3855

They are still looking for healthy controls:

Minor, typo-type point: “The planned opening date is 12 January 2023, which is much sooner than the above call on high-burden and under-researched illnesses. Researchers will then have 4 months to submit their proposal as the deadline is 13 April 2023” That’s basically 3 months not 4.

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Free full text: https://www.mdpi.com/2227-9059/11/1/132 The Behavior of Muscle Oxygen Saturation, Oxy and Deoxy Hemoglobin during a Fatigue Test in Fibromyalgia by Santos Villafaina 1, Pablo Tomas-Carus Tomas-Carus 2,3, Vanda Silva 4, Ana Rodrigues Costa 5, Orlando Fernandes 5 and Jose A...

Tributes to 'warrior' woman, 32, who died after battle with chronic fatigue syndrome Kara Jane Spencer was diagnosed with the illness 15 years ago https://www.liverpoolecho.co.uk/news/liverpool-news/tributes-warrior-woman-32-who-25926032

Saturday January 21 ME CAREGIVER SUPPORT CALL https://www.meaction.net/event/me-caregiver-support-call/2023-01-21/ 15:30 EST/20:30 Great Britain & Ireland Find the time in your time zone here...

Wasn't sure whether to put this in a separate thread or not as is a bit different from the main #MEAction activities Thursday January 19 MEACTION GEORGIA SUPPORT CALL This is available to people worldwide https://www.meaction.net/event/meaction-georgia/2023-01-19/ 13:00 EST/18:00 Great...

To facilitate sharing on Twitter, though her appeal may be for other interviews as well?

Tuesday, January 17 Free, professionally-facilitated online support group https://batemanhornecenter.org/event/online-support-group-40/ 13:00 MST/20:00 in Great Britain & Ireland Find the time in your time zone here...

Thanks. It's useful to use words and terms correctly. What I meant by the following: is that the person wasn't convinced that a biopsychosocial model might save an insurance company much money. With disability insurance, I think that's incorrect: if a disability insurance company can find a...