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  1. Dolphin

    News from Aotearoa/New Zealand and the Pacific Islands

    This showed up in a search because of reference 6. Unfortunately, I can't access it, so I have no idea how worthwhile it is to highlight. https://www.nzdoctor.co.nz/node/19379 What to expect the first time you encounter a patient with ‘long COVID’ 1 September 2021
  2. Dolphin

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Changing close contact rules for children risks complications of Long Covid, says expert [..] "Young adults are getting Long Covid - you can have mild symptoms, you can be 16-years-old, and you can have 15 months of chronic fatigue syndrome and all sorts of neurological problems as part of...
  3. Dolphin

    Lumpers Versus Splitters: Analysing the Effects of Soothers on Fibromyalgia and Chronic Fatigue Syndrome, 2021, Crowe (M.Sc. Thesis)

    Table 1. List of soothers used for this study 1) Mindfulness (living in the here and now and being non-judgmental) 2) Aids (such as a wheelchair, jug, comfortable matrass or good pillows) 3) Medication that reduces disease activity or symptoms 4) Doing a fun thing with family or friends 5) A...
  4. Dolphin

    Lumpers Versus Splitters: Analysing the Effects of Soothers on Fibromyalgia and Chronic Fatigue Syndrome, 2021, Crowe (M.Sc. Thesis)

    via Dr. Marc-Alexander Fluks Source: University Utrecht Date: May 11, 2021 URL: https://dspace.library.uu.nl/handle/1874/405927 https://dspace.library.uu.nl/bitstream/handle/1874/405927/Crowe%20%288158479%29%20thesis.pdf Lumpers Versus Splitters: Analysing the Effects of Soothers on...
  5. Dolphin

    BPS attempts at psychologizing Long Covid

    Opinion: Coping with Long Covid - how exercise and other treatments can help The focus on research into and symptoms of Long Covid needs to be complimented by treatment options, writes Dr Jennifer Dineen. https://www.thejournal.ie/readme/what-is-long-covid-and-do-i-have-it-5543894-Sep2021/
  6. Dolphin

    Association between physical exercise and stroke recurrence among first-ever ischemic stroke survivors, 2021, Hou et al.

    https://www.nature.com/articles/s41598-021-92736-5 Article Open Access Published: 28 June 2021 Association between physical exercise and stroke recurrence among first-ever ischemic stroke survivors Lisha Hou, Mier Li, Ju Wang, Yawen Li, Qianwen Zheng, Lu Zhang, Qiang Yao, Jing Zhang...
  7. Dolphin

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I can't access the abstract. Quickly looking at the slides, I can't see any reference to "chronic fatigue syndrome". The article says this which does sound like it is referring to a diagnosis of chronic fatigue syndrome, but I would like something more definite: --- I found this interesting:
  8. Dolphin

    COVID-19 symptoms over time: comparing long-haulers to ME/CFS, Jason et al, 2021

    I don't have access to the full paper, but the convenience samples that Leonard Jason has used have tended to be people who are ill, on average, many years with a low employment rate. I have taken part myself in some of the surveys (I am housebound for decades). It's not that surprising that...
  9. Dolphin

    COVID-19 symptoms over time: comparing long-haulers to ME/CFS, Jason et al, 2021

    I agree. It's a pity because he has a ready-made cohort of people who got ME/CFS following another infection (EBV). He could have compared changes over time in both groups.
  10. Dolphin

    UK Action for ME - policies, actions and publications - discussion thread

    26F/2M I looked up photos of Sam (male) and Vic (female).
  11. Dolphin

    UK Action for ME - policies, actions and publications - discussion thread

    Wasn't sure where to post this. I doubt it matters, but I saw someone highlight that all 13 of their staff in this photo are female.
  12. Dolphin

    News from Aotearoa/New Zealand and the Pacific Islands

    Thanks. I found the discussion of the exercise intensity of specific activities of work and daily activities towards the end of Dr Hodges’ statement interesting.
  13. Dolphin

    Dr Karl Morten - UK researcher based at Oxford University

    They posted a number of tweets in the last day or so. Poster is a Twitter novice so didn’t do the thread right. Sample:
  14. Dolphin

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Don’t know anything more. I presume this is in Canada not the UK:
  15. Dolphin

    'A life I can cope with'. An alternative model of cognitive behavioural therapy (CBT) for CFS/ME, Clark et al., 2021

    Fred Friedberg previously devised a cognitive therapy approach that was based on pacing rather than graded activity. See Table 1 here for the elements of it...
  16. Dolphin

    A general thread on the PACE trial!

    The official protocol is here: https://bmcneurol.biomedcentral.com/articles/10.1186/1471-2377-7-6 It uses 65 or less. I think it one stage it was 60 and then it was moved (I'm a bit rusty). It definitely wasn't 75 when they started recruiting. The interesting thing about their proposing 75...
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