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  1. Dolphin

    USA: News from #MEAction

    Thursday, March 16 #MEACTION GEORGIA SUPPORT CALL People anywhere in the world can take part in this https://www.meaction.net/event/meaction-georgia/2023-03-16/ 5 PM in GB & Ireland Find the time in your time zone here...
  2. Dolphin

    A general thread on the PACE trial!

    Not exactly sure what you are asking but they did publish a paper which found no benefit with regard to employment: https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0040808
  3. Dolphin

    Long-term sequelae of COVID-19 in children: a retrospective cohort study, 2022, Visonà

    Some sort of thesis. Free fulltext: https://thesis.unipd.it/retrieve/8ebacd1c-59ba-47b1-9341-4073530aea30/TESI_VisonaElisa_30.06.2022.pdf ABSTRACT Background. Despite children are largely spared from severe COVID-19 compared to adults, recent data shown that they may also suffer from...
  4. Dolphin

    USA: News from the Bateman Horne Center

    Tuesday, March 14 free, professionally-facilitated online support group https://batemanhornecenter.org/event/online-support-group-43/ 1PM MDT/7PM Great Britain & Ireland Find the time in your time zone here...
  5. Dolphin

    A general thread on the PACE trial!

    PEM, The PACE Trial, & Coyne The ally who changed course mid-air to advocate for ME and denounce PACE https://encephalogirl.substack.com/p/pem-the-pace-trial-and-coyne
  6. Dolphin

    Long Covid in the media and social media 2023

    I know I sound like a broken record but most government research funded bodies only tend to fund a fraction of research grant applications. You need private money to help ensure other interesting angles get followed up and also to help keep researchers in a field.
  7. Dolphin

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    Dedra Buchwald can be a bit biopsychosocial. I think she co-signed one or more of the letters Peter White and co organised.
  8. Dolphin

    Long Covid in the media and social media 2023

    This ends up on similar lines:
  9. Dolphin

    Long Covid in the media and social media 2023

    Thread in response to these and similar tweets:
  10. Dolphin

    EUROPEAN ME NETWORK (EUROMENE) Expert Consensus on the Diagnosis, Service Provision and Care of People with ME/CFS in Europe, 2020, Nacul et al.

    There is little talk of the need for physiotherapists/physical therapists in this document which I agree with. I think you are asking for problems if you have a service involving physiotherapists/physical therapists. Here is a tweet today that I think shows the typical attitude of...
  11. Dolphin

    EUROPEAN ME NETWORK (EUROMENE) Expert Consensus on the Diagnosis, Service Provision and Care of People with ME/CFS in Europe, 2020, Nacul et al.

    As long as they are good. The English system had clinical champions like the biopsychosocial ideologue, psychiatrist Peter White.
  12. Dolphin

    EUROPEAN ME NETWORK (EUROMENE) Expert Consensus on the Diagnosis, Service Provision and Care of People with ME/CFS in Europe, 2020, Nacul et al.

    From A professional view on symptom management and relief Dr. L. Lorusso (personal communication) (part of Box 11) Excessive rest is by definition excessive. However, I’m not sure how common it really is.
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