Search results

For what it is worth: Open label trial AIM ImmunoTech Announces Phase 2 Study of Ampligen® for the Treatment of Pancreatic Cancer is Open and Recruiting Patients Ongoing efforts to open additional clinical sites for recruitment at premier cancer centers across the U.S. and Europe are in...

This German newspaper article says a new group Mirame Arts are going to help with the marketing of DecodeME.

Not convinced CBT needed to be mentioned Ref 67 isn’t a CFS-specific paper. The PACE trial didn’t find long-term benefits from CBT even when assessed by questionnaires.

This contains the sentence I’m most concerned about in the document: I think it should say something like “testing to see if the boundaries can be extended”: there is certainly no guarantee they can be. Fortunately, I think this might be the only such wording in the document, with plenty of...

7th Anniversary of My Trip to Belfast on Behalf of Patients With Chronic Fatigue Syndrome Talks in which I said: "The PACE trial of CBT and graded exercise was 'bad science that was being badly misrepresented by the investigators,' causing 'clear harm to patients'.” by Dr James Coyne...

Lists some questionnaires that could be used with patients:

This is mentioned more than once as I recall:

Good to see it mentioned explicitly help in such areas may be required (though in some ways obvious).

Not convinced by this sentence:

Ref 18 is 18. Jason L.A. Evans M. Porter N. et al. The development of a revised Canadian myalgic encephalomyelitis chronic fatigue syndrome case definition. Am J Biochem Biotechnol. 2010; 6: 120-135 This was an attempt to operationalise the Canadian criteria.

https://openresearch.nihr.ac.uk/articles/3-10 RESEARCH ARTICLE Clinical trial Development of an online intervention for the Rehabilitation Exercise and psycholoGical support After covid-19 InfectioN (REGAIN) trial [version 1; peer review: awaiting peer review] Stuart Ennis1,2, Peter Heine1,2...

Apologies if this has been highlighted before, but I just came across it. This has a few mentions of ME/CFS: National COVID-19 Health and Research Advisory Committee∗ Date of advice: 26 April 2022 Advice 29: Update on Long COVID...

For what it is worth: Inspirational story of victory in the Library of Alexandria --------------------------------------- 'Bibliotheca Alexandria' has organized at the Conference Center a lecture entitled “Invisible Disabilities”, in which it hosted Dr. Ayman Youssef, one of the inspiring...

There are a few recommendations for telemedicine and home visits, which is good:

Based on what happened in the UK and Belgium, I wonder how often specialist services in practice help in all these areas:

I think some but not all “sleep hygiene” techniques can be useful so it can depend what they are suggesting.