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  1. Saz94

    B12/Folic Acid and D3/K2 Supplementation

    Sorry, I should clarify what I meant. I meant, I know of plenty of PWME (including myself and @Hip ) who report great effects from transdermal B12. I then shared that site as being one source of transdermal B12.
  2. Saz94

    B12/Folic Acid and D3/K2 Supplementation

    Many patients report that transdermal B12 delivery (i.e. through the skin) is very effective too. https://b12oils.com/products.htm
  3. Saz94

    Evolving evidence about diet and health, 2018, Mente et al, Lancet

    What do you think of the "healthy at every size" movement? https://www.google.com/amp/s/www.huffpost.com/entry/can-you-be-healthy-at-eve_b_7905358/amp
  4. Saz94

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    What?!?! Why isn't this publicised?! That's really troubling. I would never have imagined that that could be dangerous.
  5. Saz94

    Is anyone else badly affected by pollen?

    Also some products here which may help. https://www.allergybestbuys.co.uk/categories/hayfever
  6. Saz94

    Is anyone else badly affected by pollen?

    I also bought an air purifier for my room, which is supposed to help.
  7. Saz94

    Is anyone else badly affected by pollen?

    I also find that anti inflammatories (medication or supplements) help - the histamine from an allergic reaction causes inflammation, which causes fatigue.
  8. Saz94

    Is anyone else badly affected by pollen?

    There are also some supplements which are thought to help reduce allergic reactions.
  9. Saz94

    Is anyone else badly affected by pollen?

    Have you tried Prevalin nasal spray? And sodium cromoglicate eye drops? Prevention stuff like not drying clothes/linen outdoors
  10. Saz94

    Is anyone else badly affected by pollen?

    Yes
  11. Saz94

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Which doctor?
  12. Saz94

    Wessely & Smith (2015): "Linking benefits to treatment is unethical and probably illegal"

    I just came across this, from 2015: https://www.theguardian.com/commentisfree/2015/jul/29/coercing-people-mental-health-problems-work-treatment Which I completely agree with, but was surprised to see Wessely saying it. Isn't it his sort of work that gets used to refuse benefits to ME/CFS...
  13. Saz94

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Yes my friend has severe gastroparesis caused by HEDS
  14. Saz94

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Jonathan, EDS diagnostics have changed since then. See this document. https://www.google.com/url?sa=t&source=web&rct=j&url=https://ehlers-danlos.com/wp-content/uploads/hEDSvHSD.pdf
  15. Saz94

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    g Jonathan, hEDS is not simply hypermobility plus pain and fatigue. The NHS Choices website page on EDS says: "People with hEDS may have: joint hypermobility loose, unstable joints that dislocate easily joint pain and clicking joints extreme tiredness (fatigue) skin that bruises easily...
  16. Saz94

    Jen Brea: My ME is in remission

    I don't find this plausible as an explanation for Jen's remission/recovery. After her thyroidectomy, her ME got WORSE, as well as experiencing new symptoms (those which alerted her to CCI). After her neurosurgeries, all her symptoms got better. It seems clear to me that her remission is related...
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