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  1. Sly Saint

    'Long Covid Research Initiative' and Polybio funded to research viral persistence and antiviral treatments

    Merged thread Dr. Amy Proal, Ph.D - Transforming Diagnosis & Treatment Of Complex Chronic Inflammatory Conditions
  2. Sly Saint

    Taking the pain out of data sharing, 2022 Matthew Hutson

    Despite agreeing to make raw data available, some authors fail to comply. The right strategies and platforms can ease the task. full article https://www.nature.com/articles/d41586-022-03133-5
  3. Sly Saint

    Trudie Chalder, BPS and MUS proponent - presentations, interviews and news

    Fountech Ventures team; Portfolio Advisors Dr Trudie Chalder Psychotherapist https://www.fountech.ventures/#team o_O
  4. Sly Saint

    Somerset NHS: Long term Health conditions (incl MUS)

    https://www.somersetft.nhs.uk/somerset-talking-therapies/?problem=long-term-health-coniditons https://www.somersetft.nhs.uk/somerset-talking-therapies/?treatment=high-intensity-cognitive-behavioural-therapy-for-long-term-conditions
  5. Sly Saint

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    South Tees Hospitals NHS still links to this: https://www.nbt.nhs.uk/sites/default/files/British%20Association%20for%20CFS%20ME%20-%20Therapy%20and%20Symptom%20Management%20in%20CFS%20ME.pdf https://www.southtees.nhs.uk/resources/bacme-guidelines-for-therapy-and-symptom-management/ (I haven't...
  6. Sly Saint

    United Kingdom: South Tees CFS Service

    Copied post South Tees Hospitals NHS still links to this: https://www.nbt.nhs.uk/sites/default/files/British Association for CFS ME - Therapy and Symptom Management in CFS ME.pdf https://www.southtees.nhs.uk/resources/bacme-guidelines-for-therapy-and-symptom-management/ (I haven't checked to...
  7. Sly Saint

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    the 'services map' seems to work on this new website. I haven't looked through all the entries but there is this one Bath Specialist Paediatric CFS/ME Treatment Service https://bacme.info/services/bath-specialist-paediatric-cfs-me-treatment-service/ pushing FITNET-NHS and yet "We believe that...
  8. Sly Saint

    Wesselys Mental Health review could also replace Mental Capacity Act

    @CRG you might not be aware of what happened to Bob (Robert Courtney). (I started this thread back in 2018 'in light of recent events' the 'recent events' are described in the following link). https://www.s4me.info/threads/bob.1068/page-2#post-41205
  9. Sly Saint

    Wesselys Mental Health review could also replace Mental Capacity Act

    Joint Committee on the Draft Mental Health Bill Written evidence MHB0001 - Draft Mental Health Bill Witnesses Professor Michael Sharpe (Professor of Psychiatry at Oxford University, UK) Committees Joint Committee on the Draft Mental Health Bill Published 30 September 2022 Written Evidence...
  10. Sly Saint

    Oxidative Stress in Fibromyalgia: From Pathology to Treatment 2022, Assavarittirong et al

    Abstract Fibromyalgia (FM) is characterized by chronic widespread musculoskeletal pain associated with sleep problems, fatigue, depression, and anxiety. The persistence of pain, impairment of cognitive function, and negative impact on the psychological state have caused a detrimental effect on...
  11. Sly Saint

    Transitional Changes in Fatigue-Related Symptoms Due to Long COVID: A Single-Center Retrospective Observational Study in Japan 2022,Nakano et al

    This article belongs to the Special Issue Advances in ME/CFS Research and Clinical Care Abstract Background and Objectives: Changes in post COVID-19 condition (PCC) characteristics caused by viral variants have yet to be clarified. We aimed to characterize the differences between clinical...
  12. Sly Saint

    OMEGA AGM 2022 with Caroline Struthers on Medical Research : 29th Oct

    I'm guessing it will; the last one was https://www.s4me.info/threads/omega-oxford-m-e-group-for-action-agm-guest-speaker-caroline-struthers-14-march-2020.13723/
  13. Sly Saint

    Primary Exertion Headaches

    wondering if this might be related to PEM? The cause is as yet unknown although there are some hypotheses. https://www.uspharmacist.com/article/exerciseinduced-headaches-prevention-management-and-treatment this is obviously aimed at healthy people who exercise and suggests 'building up...
  14. Sly Saint

    Introduction to Clinical Aspects of the Autonomic Nervous System Volume 2 Book • Sixth Edition • 2022

    https://www.sciencedirect.com/book/9780323960113/introduction-to-clinical-aspects-of-the-autonomic-nervous-system#book-description
  15. Sly Saint

    OMEGA AGM 2022 with Caroline Struthers on Medical Research : 29th Oct

    OMEGA AGM & talk by Caroline Struthers -An activist waiting to happen: my journey from ignorance to critic of establishment-backed research. By OMEGA, Oxfordshire M. E. Group for Action. When and where Date and time Sat, 29 October 2022, 14:00 – 16:00 BST Location Online About this event A...
  16. Sly Saint

    Will Covid Brain Fog Increase Risks for Alzheimer’s Disease?

    https://www.psychologytoday.com/gb/blog/mental-mishaps/202209/will-covid-brain-fog-increase-risks-alzheimer-s-disease
  17. Sly Saint

    USA: News from the Bateman Horne Center

    Project Echo Webinar Registration https://echo.zoom.us/webinar/register/WN_bahjLohdT42ZKuVEEsHD5w
  18. Sly Saint

    USA: UC Health to present Systemwide Grand Rounds on Long COVID on October 14

    https://pharmacy.ucsf.edu/news/2022/09/uc-health-present-systemwide-grand-rounds-long-covid-october-14
  19. Sly Saint

    Research priorities for ...(ME/CFS): the results of a James Lind alliance priority setting exercise, 2022, Tyson et al

    similarly it is vital that any research done on PEM adheres to a much tighter set of symptoms/definition and not just what the researcher thinks it is (eg fatigue post exercise/activity).
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