Despite agreeing to make raw data available, some authors fail to comply. The right strategies and platforms can ease the task.
full article
https://www.nature.com/articles/d41586-022-03133-5
South Tees Hospitals NHS still links to this:
https://www.nbt.nhs.uk/sites/default/files/British%20Association%20for%20CFS%20ME%20-%20Therapy%20and%20Symptom%20Management%20in%20CFS%20ME.pdf
https://www.southtees.nhs.uk/resources/bacme-guidelines-for-therapy-and-symptom-management/
(I haven't...
Copied post
South Tees Hospitals NHS still links to this:
https://www.nbt.nhs.uk/sites/default/files/British Association for CFS ME - Therapy and Symptom Management in CFS ME.pdf
https://www.southtees.nhs.uk/resources/bacme-guidelines-for-therapy-and-symptom-management/
(I haven't checked to...
the 'services map' seems to work on this new website.
I haven't looked through all the entries but there is this one
Bath Specialist Paediatric CFS/ME Treatment Service
https://bacme.info/services/bath-specialist-paediatric-cfs-me-treatment-service/
pushing FITNET-NHS and yet "We believe that...
@CRG
you might not be aware of what happened to Bob (Robert Courtney).
(I started this thread back in 2018 'in light of recent events' the 'recent events' are described in the following link).
https://www.s4me.info/threads/bob.1068/page-2#post-41205
Joint Committee on the Draft Mental Health Bill
Written evidence
MHB0001 - Draft Mental Health Bill
Witnesses Professor Michael Sharpe (Professor of Psychiatry at Oxford University, UK)
Committees Joint Committee on the Draft Mental Health Bill
Published 30 September 2022
Written Evidence...
Abstract
Fibromyalgia (FM) is characterized by chronic widespread musculoskeletal pain associated with sleep problems, fatigue, depression, and anxiety. The persistence of pain, impairment of cognitive function, and negative impact on the psychological state have caused a detrimental effect on...
This article belongs to the Special Issue Advances in ME/CFS Research and Clinical Care
Abstract
Background and Objectives: Changes in post COVID-19 condition (PCC) characteristics caused by viral variants have yet to be clarified. We aimed to characterize the differences between clinical...
I'm guessing it will; the last one was
https://www.s4me.info/threads/omega-oxford-m-e-group-for-action-agm-guest-speaker-caroline-struthers-14-march-2020.13723/
wondering if this might be related to PEM?
The cause is as yet unknown although there are some hypotheses.
https://www.uspharmacist.com/article/exerciseinduced-headaches-prevention-management-and-treatment
this is obviously aimed at healthy people who exercise and suggests 'building up...
OMEGA AGM & talk by Caroline Struthers -An activist waiting to happen: my journey from ignorance to critic of establishment-backed research.
By OMEGA, Oxfordshire M. E. Group for Action.
When and where
Date and time
Sat, 29 October 2022, 14:00 – 16:00 BST
Location
Online
About this event
A...
similarly it is vital that any research done on PEM adheres to a much tighter set of symptoms/definition and not just what the researcher thinks it is (eg fatigue post exercise/activity).
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