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"Unhelpful beliefs such as fear of activity and exercise and concerns about causing damage, combined with all or nothing behaviour and behavioural avoidance, were associated with not working and are specifically targeted in CBT and, to some extent, GET"

"Patients fulfilled NICE criteria for CFS [12]. 12. Sharpe MC, Archard LC, Banatvala JE et al. A report—chronic fatigue syndrome: guidelines for research. J Royal Soc Med 1991;84:118–121."

retweeted by Michael Sharpe

full paper Chronic fatigue syndrome and occupational status

This Sugar Cured One Woman’s Long Covid Symptoms https://www.womansworld.com/posts/natural-health/long-covid-natural-cure

UK: MetLife records dramatic surge in Long Covid Q3 claims https://www.covermagazine.co.uk/news/4041706/metlife-records-dramatic-surge-long-covid-q3-claims

not listened to it so no idea of content. https://player.fm/series/one-thing-with-dr-adam-rinde/mitochondrial-dysfunction-and-autism-with-dr-richard-g-boles

‘Faceless monster, secret society’: Women's experiences navigating the administrative burden of Australia's National Disability Insurance Scheme https://onlinelibrary.wiley.com/doi/10.1111/hsc.13669?af=R We've created a thread for the paper here: 'Faceless monster, secret society': Women's...

‘Faceless monster, secret society’: Women's experiences navigating the administrative burden of Australia's National Disability Insurance Scheme Abstract Previous research has indicated that administrative burdens are particularly high in personalised funding schemes such as the Australian...

apart from the going to sleep bit, yes it sounds 'normal' to me. A moment of exertion can trigger it off, and it comes over in a sort of wave like a change in gravity. eg lifting something, doing something too quickly.

as it is 'the festive season' I am reminded of the song 'Father Christmas do not touch me'. (the Goodies did a version)

Alex Sobel Shadow Minister (Digital, Culture, Media and Sport) To ask the Secretary of State for Health and Social Care, what steps he is taking to help ensure that NICE guidelines on treating and caring for people with ME are implemented across the NHS effectively, including within GP...

"I think #pwME should also refuse to use the chronic fatigue syndrome terminology" very simplistic idea and not that straightforward. it might help if pwLC acknowledged that the terminology they are using like brain frog and PEM have been used by the ME/CFS community for the last 30 years, PEM...

@rvallee has just posted a retweet of this by Carson https://www.s4me.info/threads/uk-nice-2021-me-cfs-guideline-published-29th-october-post-publication-discussion.22996/page-34#post-395460

"by saying post-exertional malaise is a key symptom for me cfs i think is critical" yes, but it still isn't mentioned on the NHS websites. Also, PEM is now being picked up by others not just the ME community and they are putting their own spin on it. It is crucial that it is put out there asap...

"interestingly nice often publishes something in the bmj but in this case nothing has been published yet" does anyone know if NICE have anything in the pipeline on this?