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Am I wrong to be worried that this attitude is going to have a knock on impact on any possibility of getting MRC to actually fund biomedical ME research. They say they support CMRC, Chris Ponting talked about a window of opportunity is that still ajar?

N im not in that part of the country and not familiar with the constitution of the charity. Many charities don’t have a democratic structure.

Good progress from AFME. Not perfect but positive. I’m sure that fence was getting very uncomfortable over the last couple of years.

Yes indeed did she get Sharpe to draft the letter for her it reads as if that’s the case

Sums up my thoughts thanks @Trish

Colin B and his Sussex group which has the roll call of BPS medics as advisers

The other night my Fitbit recorded 2 hours deep sleep which is astonishingly high for me no idea why that happened. I wish I did.

i realise this is going off at a tangent but I was having a quick look at what wikipedia says about phenylanaline and obviously as a non scientist didnt grasp much but I did spot that it says aspartame is metabolised into phenylalanine

Until recently dementia wasn’t very often recorded as cause of death often pneumonia would be the immediate cause. we need to find out what happened to change that. Wondering if it would be worth me writing to Alzheimer’s charities to ask?

You have to present things in the right way for the audience and this looks like a good way of getting key messages out. If people want more they can follow up afterwards.

those MPs who have previously said they wont or dont* sign EDMs could be approached again and asked to sign this letter because it is not an Early Day Motion *(anyone who is a Govt Minister or minister's assistant (Parliamentary Private Secretary) doesnt sign EDMs by convention as they are a...

So what’s the difference between body knowledging and the U.K. CFS/ME clinics “Management programmes”. None - sounds exactly like what I did in 2016. PACE-lite.

I’ve been enjoying Test Match Special on Radio 4 longwave available online or through digital TV. Even though India are shredding England. Bit of a niche one though. :D

They also get the benefit of promotion of the approach to all GPs. Which obviously they need to do to try keep them on board with the status quo now that NICE guidelines are being reviewed and non BPS messages are getting out there. It is a political campaign. ETA. So we hear snippets about...

Yes but in my simple head with ME they are saying that the difference between us and the people who recover from the nasty virus or whatever triggers it is we become deconditioned because of our unhelpful beliefs and behaviours. Which they attempt to treat by changing our beliefs and behaviours...

interesting what she says about realising she's actually not recovered but had improved to a higher level of functioning

hard evidence -if we needed it- that "distressing" must be removed from the NICE scoping document description of ME - it is BPS terminology ETA why do they insist on renaming things in this case their new name for chronic health conditions translates to chronic and upsetting chronic health...

they're not medics or scientists are they?

boom boom as Basil Brush would say ;)

maybe @Woolie would have info?