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judicial review against NICE guidelines (if thats what they have in mind) was already tried some years ago though and wasnt successful

there are enough people in the UK who pay (either directly or if they have private insurance) for CBT/GET with the likes of Optimum Health and who pay for Lightning and all the other BS to make a nice living for all the purveyors

what decision is Dr M considering asking for a judicial review of?

this

insomnia tired but wired is definitely an issue for me and even when im not having PEM, which is when I get tired but wired, my sleep is poor I wake up feeling rough every day its just a question of does it ease off somewhat and how quickly

oh great moss-morris AND chalder :rolleyes: :eek:

i dont get much brainfog nowadays when I was working I used to notice it more frequently - I was filling a form in yesterday and the same thing happened - it was to do with prolonged concentration for around 90 minutes at a certain point my energy would just be drained and I couldnt concentrate...

As a chunky person I struggle with the heat so have been doing some of this for years when I didnt have ME as well if there's some sort of breeze only have windows open on the cooler side of the house - keep them shut in the afternoon open up in evening and morning when cooler. Keep my blinds...

i was seen by a physiotherapist for my initial assessment I think I would have been seen as a good potential candidate for their stats because I was working part time not surprisingly attending their clinic group sessions didnt help me increase my working hours and I have now retired early I...

I think theres an element of needing to try all means of pursing a complaint to demonstrate to less sympathetic politicians that the harm caused just isnt being properly addressed by the medical establishment obviously having a change in the guidelines is necessary but it doesnt address harms...

surprised its that many - the service I went to didnt even have a Dr

ME Association summary from earlier this year on Visual Impairment Research https://www.meassociation.org.uk/wp-content/uploads/MEA-Summary-Research-Review-Visual-Impairment-in-M.E.-05.03.18.pdf

thanks @Trish

thanks @Sly Saint there was just something at the back of my mind when I saw that name so that must be the bell that was ringing anyway barge pole has been duly deployed ;)

completely by fluke I was looking for some info for an undiagnosed person living in Norway who has just joined a support group Im involved in and came across some information in Norwegian that I google translated as it mentioned Professor Findley in a section about the Lightning Process...

when they say respect what they want is deference which really means submission

this is the first time ive been emailed asking to share info on a book- actually my role in the group is to act as contact point for new members wanting to join. I wouldnt post something on the facebook page about a book unless I personally had found it useful, it would be my personal view. I...

@Trish thanks so much for doing that - on reading the preview info it didnt give much away in terms of detail - bizarre that despite becoming severe because of exercise she doesnt criticise GET that has been very helpful in making my decision :thumbup: ETA the email said she is "70% recovered"

Anyone read this book or know anything about the Essex severe ME service which was run by Prof Findley which the author Catherine Saunders got support from and appears to be basing advice on their approach Ive been asked to share it on a facebook group it is quite expensive even in kindle so...

just realised its not recorded on this thread that when they hit 25% they advertised for someone for a 3 month assignment. hopefully the assignment will be extended as more money is raised https://www.meaction.net/uk-outreach-advocacy-coordinator/