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Background: Around 10% of people who had COVID-9 infection suffer from persistent symptoms such as fatigue, dyspnoea, chest pain, arthralgia/myalgia, sleep disturbances, cognitive dysfunction and impairment of mental health. Different underlying pathomechanisms appear to be involved, in...

Published papers thread for w/c 18th Dec. Facebook: https://www.facebook.com/sci4me/posts/pfbid0ThSX1idphVHc5G6TENKViCsT61fdikqEdJxRhXRUHcVATUSG54btgAJyXn3G7ARZl Mastodon: https://med-mastodon.com/@s4me/111645927909375787

Yep.

The following tweet denies this "Hi Stephen, I still run my own social media despite being privileged to work with Dr Proal. What I meant in this comment the Christoph is that in folks with LC (and now in vaccine injury as we have been studying pw vaccine injury with Dr Iwasaki) is we see immune...

Three unemployed people explain how they feel targeted by the Tories over their inability to join the workforce ... Others have been forced out of work after an injury. Jordan, 27, was in the early months of a history PhD in Leicester in January 2022 when she suffered a minor head injury after...

Full title: Responsiveness and meaningful thresholds of PROMIS pain interference, fatigue, and physical function forms in adults with idiopathic inflammatory myopathies: Report from the OMERACT Myositis Working Group Background A series of qualitative studies conducted by the OMERACT Myositis...

ABSTRACT Cancer-related fatigue (CRF) is a distressing side effect of cancer and treatment, affecting both patients during active treatment and survivors, negatively impacting quality of life. While its exact cause remains uncertain, various mechanisms such as immune dysfunction, HPA-axis...

We have had decades of patients using their own words to describe their symptoms, using such words as tired or fatigued. Definitions from various online dictionaries, Tired - " in need of rest or sleep", "weary; fatigued", "depleted of strength or energy", "feeling that you want to rest or...

The incredible story of the PACE trial for ME/CFS | Part 1 How a phase 3 clinical trial went off the rails and led patients around the world to receive inappropriate therapies which, in some cases, caused them profound and lasting harm...

So what should we use then? What terminology would be 'acceptable' to researchers? It seems to me that, as per usual, pwME, who after all also have to deal with cognitive issues, are in a bind where we use the words available to us to describe our experience but because the words we use don't...

No, I'm not conflating anything. I feel a sense of energy depletion all the time - and this gets worse the more I do, up to a point where I don't feel the ability to initiate anything else. Sorry if that doesn't make scientific sense but that is how it is for me, and I believe many other people...

I consider myself challenged then. If that were true then why would pacing be so important? I have nothing like what you suggest - if I let myself then I would have numerous initiated tasks that I would then not complete, due to what I can only describe as a lack of energy, however technically...

News in Brief posts for w/c 18th Dec. Facebook: https://www.facebook.com/sci4me/posts/pfbid02QR5u1YKBbj3quiTurz1s2bHW87e7NsE5o8aKb8XMjNPPuQeznWCeBYBF8mnWMbX2l Mastodon: https://med-mastodon.com/@s4me/111635284171929722

Then that shows I don't understand your analogy.

Are we not talking about different things here? I make no claim to be able to define PEM or the other issues that pwME face in terms of what is actually going on biologically, but what I do claim is that I try to explain as clearly and as logically as I can my experience, and what I understand...

Well, I for one don't understand the distinction being made between exertion and energy-consuming activity. Or at least I don't understand the importance of the difference within the context of this discussion. In your examples exertion seems to equate to what I would understand as "use of...

Can get to them via https://event.roseliassociates.com/me-cfs-research-roadmap/recordings/

While I don't disagree with your nuance, the issue we have at the moment is that part of the listed PEM complex is fatigue, so we then get PEM defined by many as "fatigue following exertion". This isn't helped by such other aspects from the DSQ as a. Dead, Heavy feeling after starting to...

The issue with that is the "can be immediate" part of "An onset that can be immediate or delayed after the exertional stimulus by hours, days, or even longer".

"PEM and post-exertional fatigue (PEF) Note that post-exertional malaise is not the same as post-exertional fatigue (PEF) as experienced by people who are healthy or deconditioned who undertake exercise outside their normal level of activity, and which may involve a day or two of feeling tired...