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  1. Andy

    Association of circulating biomarkers with illness severity measures differentiates ME/CFS and post-COVID-19 condition, 2023, Domingo, Castro-Marrero

    Or the differences could be down to length of illness. "Illness duration at the inclusion time, years ME/CFS, 7.4 ± 0.7 LC, 2.1 ± 0.6"
  2. Andy

    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Fall 2023

    Our household of two people received today three cards from Berkeley.
  3. Andy

    Post-Traumatic Stress Disorder and Complex Post-Traumatic Stress Disorder in people with long COVID, ME/CFS, and controls 2023 Sanal-Hayes et al

    Background Prevalences of Post-Traumatic Stress Disorder (PTSD) and Complex Post-Traumatic Stress Disorder (CPTSD) have not previously been compared between individuals with long COVID and individuals with Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS), and healthy age-matched...
  4. Andy

    International: Science for ME social media posts

    Published papers thread for w/c 11th Dec. Facebook: https://www.facebook.com/sci4me/posts/pfbid02rKbS9xqhParXB5miDyCxschKtb5BezxfGQ6pe7z3pEHw86QYC79ifajP3Zb1sE7nl Mastodon: https://med-mastodon.com/@s4me/111600888462758464
  5. Andy

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    9,720 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review
  6. Andy

    International: Science for ME social media posts

    News in Brief posts for w/c 11th Dec Facebook: https://www.facebook.com/sci4me/posts/pfbid02X9qNLLMnudvq1RboSegNJrhuZy8fphniLqfSCjy4hVnzL5HCCqDjxpbmc61nKzvFl Mastodon: https://med-mastodon.com/@s4me/111595582727954238
  7. Andy

    News from The Netherlands

    Posted by @Grigor on Twitter, "OMFG! CBT/GET promoter Elise van de Putte. Author of the Dutch PACE-trial called FITNET admits that she harmed about 30 to 40 % of the patients with "#CFS". Obviously this is a huge underestimation & she's still promoting CBT/GET eventhough it goes against...
  8. Andy

    The Netherlands: Paediatrician Elise van de Putte

    Post copied from News from The Netherlands Posted by @Grigor on Twitter, "OMFG! CBT/GET promoter Elise van de Putte. Author of the Dutch PACE-trial called FITNET admits that she harmed about 30 to 40 % of the patients with "#CFS". Obviously this is a huge underestimation & she's still promoting...
  9. Andy

    Sociodemographic and hospital characteristics for patients with severe functional disorder receiving specialized treatment... 2023 Korsgaard Brund+

    "Introduction Functional disorder (FD) is typically characterized by the presence of one or multiple chronic symptoms, that reduces functional capacity and quality of life, which cannot be attributed to a known somatic disease [1]. The diagnosis/term FD is a relatively new although the...
  10. Andy

    Sociodemographic and hospital characteristics for patients with severe functional disorder receiving specialized treatment... 2023 Korsgaard Brund+

    Full title: Sociodemographic and hospital characteristics for patients with severe functional disorder receiving specialized treatment at hospital. A regional register-based cross-sectional study from Denmark Objective 10% of all adult Danish citizen has a functional disorder (FD). This study...
  11. Andy

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    9,661 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review
  12. Andy

    The Observer/Guardian article: Does the microbiome hold the key to chronic fatigue? About patient led 'research' group Remission Biome.

    So those of us who don't support the idea of encouraging random people to consume a wide variety of antibiotics and supplements, that have little to no evidence to back up their use are close minded? You certainly seem to be suggesting that.
  13. Andy

    Hypothesis Microvascular Capillary and Precapillary Cardiovascular Disturbances Strongly Interact to Severely Affect Tissue Perfusion and ... 2023 Wirth and Löhn

    Full title: Microvascular Capillary and Precapillary Cardiovascular Disturbances Strongly Interact to Severely Affect Tissue Perfusion and Mitochondrial Function in ME/CFS Evolving from the Post COVID-19 Syndrome Abstract Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a...
  14. Andy

    Closed UK: DecodeME updates, was recruitment thread.

    Transcript and audio only version of the webinar now available here, https://www.decodeme.org.uk/webinar-recording-and-transcript-second-questionnaire/ And, separately, the final email newsletter for the year. "As we approach the end of the year, we wanted to thank you for everything we have...
  15. Andy

    Closed UK: DecodeME updates, was recruitment thread.

    Also now available on YouTube I anticipate, but don't know for certain, that the transcript will be available next week.
  16. Andy

    Closed UK: DecodeME updates, was recruitment thread.

    Thank you Trish, I'll pass your comment along so that the many people behind the scenes know that their hard work is appreciated.
  17. Andy

    GDF15 linked to maternal risk of nausea and vomiting during pregnancy 2023 Fejzo et al (hyperemesis gravidarum - morning sickness in pregnancy)

    Thought this also seemed interesting, GDF15 promotes weight loss by enhancing energy expenditure in muscle, 2023, Wang et al Abstract Caloric restriction that promotes weight loss is an effective strategy for treating non-alcoholic fatty liver disease and improving insulin sensitivity in people...
  18. Andy

    Systems thinking, subjective findings and diagnostic “pigeonholing” in ME/CFS: A mainly qualitative public health study... 2023 Habermann-Horstmeier

    Full title: Systems thinking, subjective findings and diagnostic “pigeonholing” in ME/CFS: A mainly qualitative public health study from a patient perspective Abstract Background ME/CFS (Myalgic encephalomyelitis/chronic fatigue syndrome) is an illness that is predominantly viewed as a...
  19. Andy

    United Kingdom: Action for ME (AfME) news

    New Genetics Research Grant Secured launching LOCOME "PrecisionLife Project Awarded Innovate UK Grant to Improve Diagnosis and Treatment of ME/CFS and Long Covid Innovative precision medicine project to diagnose ME/CFS more accurately and long Covid and find the most appropriate treatment...
  20. Andy

    Closed UK: DecodeME updates, was recruitment thread.

    The recording of the webinar can be watched on Facebook here, https://www.facebook.com/decodeMEstudy/videos/795507245717308 Transcript will follow in due course, as will it being available on YouTube.
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