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@Hutan thanks. You are meant to acknowledge ChatGPT if you use it but I imagine a lot of people aren’t.

I just asked ChatGPT to write a little summary of this article and got: “Artificial Intelligence, Grassroots Rebels, and the Pharmaceutical Cuckoo" URL: https://healthinsightuk.org/2019/07/25/artificial-intelligence-grassroots-rebels-and-the-pharmaceutical-cuckoo Author: Dr. Trudie Chalder...

Has anyone else caught the AI bug? I’m completely obsessed by AI Revolution developments at the moment. I’ve started a blog series on the theme which I think some of you will find interesting: https://tipsforme.wordpress.com/category/format/ai-series/ I’m queuing up scheduled posts to publish...

A twist was that on the evening I started this thread I started vomiting and came down with a nasty virus. This makes me think that day’s blood pressure readings probably aren’t very representative and I need to start over. Hopefully I get a fairly typical day to try again before the...

I suppose that’s sort of what he’s getting me to do on the cheap! It does seem like the more formal recording could be worthwhile though. But an advantage with our current method is I’m noting down the situation each time (lying, sitting, standing, timing of food and medication) so it’s easier...

I’m recording my blood pressure in preparation for a POTS appointment. Before my last appointment my blood pressure was quite changeable and my doctor asked me to record it repeatedly on the same day to see if we can work out a pattern. I’m wondering if people here might have experience of...

yes I’m not going anywhere near that, today I’ve had 1 tablet.

This week I’ve decided to switch to aspirin (rather than ibuprofen or paracetamol) as OTC pain relief because of thinking about this and the long covid equivalent study. Does this seem like a reasonable tweak? I don’t mean I’m taking it everyday regardless, but at the times I’d normally reach...

this is what I popped over here to discuss. These days I’m only up to following research via the ME Association podcast or YouTube. I’m curious what number of steps would seem right for Severe ME? I find I can’t sustain 300 steps a day, and I think in that number my sports watch is sometimes...

Answering my own question https://www.sciencedirect.com/science/article/abs/pii/S1089860319301363 so it seems like they’re worthwhile if you want to see if something can change your nitric oxide levels but not necessarily if you want to know if your levels are generally low.

Is this a credible way to test your own NO levels? https://www.ebay.co.uk/itm/25-Nitric-Oxide-Test-Strips-Saliva-15-second-test-levels-of-NOX-in-the-body-/254634046959?mkcid=16&mkevt=1&_trksid=p2349624.m46890.l49286&mkrid=710-127635-2958-0 or...

Eg is this relevant https://www.frontiersin.org/articles/10.3389/fphys.2015.00020/full Haven’t been able to read article but “Figure 1. Interrelation between nitric oxide and mitochondria in the pathophysiology of metabolic syndrome (a, in the vascular wall; b, in an adipocyte; c, in a...

I’m not up to reading much, but yesterday I was trying to understand this general area via YouTube explainer videos. It seems like NO issues might relate more generally to immune, neurological and cardiovascular/autonomic function. That sounds like a promising intersection for us, is there...

I’m not well enough to read the full thread, so sorry if this has been resolved. I’m also thinking about this issue as my Wheelchair88 seems to be on the way out. This wheelchair is affordable and meets almost all my criteria. I probably only need to raise my legs a couple of times a month (it...

I had Pfizer yesterday afternoon so this is my initial feedback: positives: it hasn’t caused an immediate ME flare, my viral/inflammation symptoms are better than average (my interpretation is my immune system is otherwise occupied and doesn’t have the resources for general autoimmune...

@Ravn I do have a GP appointment later today to discuss if I need to stop fludrocortisone before having the vaccine, but I have no confidence that they’d know anything about ME specific reactions to particular vaccines. It’s emotionally challenging to not have access to medical advice I trust...

That doctor will be retired now or I would have asked him. He’s the only immunologist I’ve seen with a ME interest - after that it switched over to the CFS Centre where there was no doctor, but that as we know is a whole other depressing story. On Health Rising various ME doctors have given...

I was getting ready to go to the vaccine drop in, then had allergies to a newly washed jumper as I put it on so I chickened out for today. Think my histamine, inflammatory response is too volatile today. Try again tomorrow.

I’m considering having my first Pfizer later today at a drop in. How did other people make the decision if you were well enough on a given day? Do you think your symptoms at the time influenced the side effect reaction/lack of reaction? I’ve been waiting for a day I don’t have swollen lymph...

@TiredSam what I mean is I was explaining my perception. Only I can know my perception. I accept that other people have different perceptions. How people read tone is quite subjective. But I’ve got really irritated now so will step away.