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She doesn't say anything about the fact that one of the most important roles of an occupation therapist is making work change to accommodate the needs of the disabled person, does she. It all seems to be on the shoulders of the patient. My OT negotiated the provision of additional equipment and...

Fantastic news!

Sure, but that doesn't alter the fact that these major advances were made, astoundingly quickly.

There have been three new treatments for spinal muscle atrophy, all of which have the potential to be genuinely life changing for children born with the condition.

Lots of things, but Go [in] Balls Deep is one of them...I don't know whether this is actually what she means, but it fits the context.

Me neither. I might support it being labelled as out of date, superseded, etc, so that it isn't quoted in current work except as an example of how or why not to do something, but I suppose that's not as easy to do as it might sound. It's really important to be able to see the journey that...

I know what you mean, but I still prefer straightforward "symptoms". I'm not convinced we really understand how a lot of symptoms are generated, even those that are supposedly understood. In many cases, I suspect all "understood" means is that—for instance—a certain type of skin rash is the...

I wonder why research doesn't focus more on why and how autoimmune diseases that affect both sexes develop in XY men. You'd remove a whole plethora of assumptions and potentially some confounding factors at a stroke. It wouldn't necessarily make it any easier to get answers, but you'd think...

And me. Thought I always have it in my quad (thigh) muscles, no matter what I do or don't do. As soon as the muscle is relaxed completely, the burning starts. If I tense them to stand up, 90% of the pain goes away until I relax them again. This means sleep without painkillers is essentially...

Is this phrase itself not a good example of epistemic injustice? If it were used commonly in connection with, say, the fatigue and unwellness that some people experience long after completing their cancer treatment, I might be less suspicious. After all, those are symptoms that are medically...

I see your point entirely, but surely it's still an essential exercise if no-one actually knows. There are all sorts of environmental and cost reasons why it would be useful to know whether surgical masks really are significantly inferior in protective terms. It might even turn out that they...

Oh, that'll help no end. After all, accounting is so much easier and quicker when you do away with all that audit bother, because you can just make the numbers up.

This is an important part of it. It's a very real phenomenon, and there can be a cumulative effect. Once our brains have registered that a particular type of sound is really hard on us, they put up defences against it, which depletes our energy even faster, which makes us even more sensitive...

It sounds like an interesting possibility to rule in or out—good luck to them. :thumbsup: It'd be great to get a reasonably clear result in an ME research project, even if it's a negative that advances our knowledge of where not to look.

Thank you, that's interesting. I suppose it partly comes down to money—it doesn't sound like a particularly cheap technique, and it might be more difficult than it looks at first sight to get the timing right. No, but perhaps if you could show something odd was going on, it might provide...

It might be that it provides an additional source of feedback about your position in space, which is enough to help reduce the disorientation (which can feel like dizziness). I'm one of those people who falls over if they stand up and shut their eyes. Nothing to do with ME, I've just never...

Would this be likely to hold, no matter what type of metabolic diversion were in place? (I suspect life's not that simple, but it sounds so much like what we need that I thought I'd wonder about it aloud anyway...)

I saw a BBC programme maybe 25 years ago, warning that almost 100 years of Georgia's research into bacteriophages was at risk due to power outages and unreliable storage equipment in the aftermath of the civil war. It prompted something of a rescue effort, and the research facility and at least...

I've never been able to use a stick, but I use this rollator (minus the bag on the front) to get me from the changing room to the swimming pool. It's very manoeuvrable, and another advantage is that it turns almost instantly into an emergency chair if I go wobbly—you just put the brakes on, turn...

Whether it's worth our bothering might depend on how they define the word "evidence". :whistle: