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Same with Amygdala retraining. Just start calling your spider Amy and you'll be ok.

I think I had neurally mediated hypotension earlier on and it resolved on its own.

I don't know if I experienced orthostatic impairment during my earlier years of PEM. I certainly didn't have any issues being upright or distressing symptoms of OI back then. I developed OI after a relapse from taking immune modulators in 2002 that reactivated both HHV6 and EBV. It...

I was a marathon runner and continued to run after I had ME. I became ill in 1991, and PEM wasn't even a term back then, delayed PEM was the most bizarre thing I ever experienced. I would recover a few days after exercise and felt I was back to 'normal', but over the next couple of...

My symptoms did not improve after constant viral reactivations, it actually brought me down further and I started experiencing orthostatic impairment which made me more disabled.

Hey Phil, Nice to see you here and sharing your recovery, and congrats on your improvement. Did you experience delayed PEM? What I would describe as immediate PEM would always involve either environment(allergies) or immunological issues (viral) My PEM has always been delayed...

Activities helps to maintain some level of 'fitness', whereas exercise increases our level of fitness? They are not interchangeable.

I would love it if Phil joined in our thread here. I also improved earlier on in the illness and was able to do more, but I hit a wall 18 years ago and can not increase anymore. If I stay within my 'energy boundary' I won't experience PEM. It would be interesting to know why Phil...

Yes, my misinterpretation was that doing more made him feel better, so he was able to do more. I was able to do more early in the illness over time naturally, but when I went over my 'limits' is when I started experiencing PEM despite how well I felt when I recovered from PEM a few days...

Thanks for the correction. That was my experience too.

I think PG definition of 'evidence synthesis' is his own selective narrative on his Twitter platform.

I have no one doubt he recovered. It's encouraging to read stories about people who suffered and recovered. The thing with ME is that you can go into remission. We can pace and rest for 30 years and still have ME once we start being fully active again. Pacing and resting doesn't...

My seasonal effect disorder is worse starting mid summer. The constant sunshine and heat gives me anxiety and I need darkness. I start feeling better during the colder winter months.

He is unable to accept the fact that he never had ME. Digging in the archives now to try and prove his point is just embarrassing for someone in his position.

Abstract Background The tryptophan–kynurenine–nicotinamide adenine dinucleotide (oxidized; NAD+) pathway is closely associated with regulation of immune cells toward less inflammatory phenotypes and may exert neuroprotective effects. Investigating its regulation in central nervous system (CNS)...

I didn't realize that Canada was 'a leader in brain research'.

VINEx and Covid Long Haulers support group Canada welcome Liberal Party of Canada's commitment to allocate $100 million to COVID-19 research...

Don't walk around barefoot for now.

I also forgot to mention that I was vaccinated (tetanus, rubella and Hep B) during that 6 months period, and it was after the second Hep B jab that I started losing stamina. I could no longer walk to school and started taking the bus.

I'm going to assume that the participants had all their metabolites tested, including Oxaloacetate before taking the supplement? I had other metabolites tested on my OAT, and there are 3 others at the beginning of the citric acid cycle that were below normal range.