No, but I was able to sit upright for long periods of time, and didn't have chest/forehead pressure or any other distressful symptoms that I experience now. Maybe there is also something else at play? I started experiencing OI after I had a relapse from taking immune modulators that...
My cognitive exertion/sensory can induce physical PEM and vice versa. I went for a 2 hour car ride several years ago and I could barely lift my arms the next day, and I was the passenger.
I had an increase in heart rate when I first took CoQ10 in the 90's from a small dose of 50 mg.
Around 15 years later I tried again and had no problem taking 100mg/day, the problem over time though was that it gave me false energy and I had difficulty falling asleep. Wired/tired.
@Snow Leopard
What they're saying now is that infections with Delta lead to higher viral loads and persist for longer than was seen with previous strains, meaning an infected person is likely contagious for longer.
Virus levels can be as high in breakthrough cases as in unvaccinated people...
@Snow Leopard
It cites a combination of recently obtained, still unpublished data from outbreak investigations and outside studies showing that vaccinated individuals infected with delta may be able to transmit the virus as easily as those who are unvaccinated. Vaccinated people infected with...
The CDC report said Delta is highly contagious, likely more severe than other variants and breakthrough infections may be as transmissible as unvaccinated cases. The Delta variant spreads like Chicken Pox, so instead of one infection infecting 3, it infects 8 people.
My cognitive impairment manifests the same way as my physical impairment. I reach a certain point and can no longer move forward; it's like walking in thick heavy mud. It's full-stop until I recharge.
We shouldn't relax when we achieve low levels of cases until we eliminate. Instead, push hard into the finish line. "Living with the virus" is not the right choice. The virus will mutate and we will again have exponential growth.
@Rosie
My arm feels less sore from the second jab b/c I'm moving it around a bit to circulate the blood, the first shot I laid down for hours w/o movement and it became very sore.
I feel sleepy too.
When is your next jab?
In the earlier years when I didn't have orthostatic impairment I was able to stay upright with no problems, read books, knit etc. I was even able to tolerate hot temperatures. I still needed adequate rest in between 'activities' but I wasn't as disabled as I am now with OI/ME.
I feel...
The immediate pathogenesis of PEM is immune related in my case (allergies or viral) and not from going over my limits. They both cause orthostatic impairment but at different levels.
Maybe immediate and delayed PEM are related in some way.
@Jonathan Edwards
Can I ask what your views are on 'autoimmune Lyme"? thank you.
This was published a few weeks ago:
https://www.nature.com/articles/s41584-021-00648-5
It will be difficult to know for sure though b/c the symptoms are improving very very slowly. But I've had them come back in full force for a day or two.
This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
By continuing to use this site, you are consenting to our use of cookies.