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  1. Mij

    PEM induced only by sensory/cognitive exertion - what does it indicate about the pathophysiology of ME?

    No, but I was able to sit upright for long periods of time, and didn't have chest/forehead pressure or any other distressful symptoms that I experience now. Maybe there is also something else at play? I started experiencing OI after I had a relapse from taking immune modulators that...
  2. Mij

    PEM induced only by sensory/cognitive exertion - what does it indicate about the pathophysiology of ME?

    The interesting thing is that I didn't have orthostatic impairment during that time period. That developed several years later.
  3. Mij

    PEM induced only by sensory/cognitive exertion - what does it indicate about the pathophysiology of ME?

    My cognitive exertion/sensory can induce physical PEM and vice versa. I went for a 2 hour car ride several years ago and I could barely lift my arms the next day, and I was the passenger.
  4. Mij

    Well-known, famous people with Covid-19 and Long Covid

    Piers Morgan's criticism towards Simone Biles withdrawing from her team b/c of mental health issues was vile.
  5. Mij

    CoQ10 - Coenzyme Q10

    I had an increase in heart rate when I first took CoQ10 in the 90's from a small dose of 50 mg. Around 15 years later I tried again and had no problem taking 100mg/day, the problem over time though was that it gave me false energy and I had difficulty falling asleep. Wired/tired.
  6. Mij

    Long covid after breakthrough infection

    @Snow Leopard What they're saying now is that infections with Delta lead to higher viral loads and persist for longer than was seen with previous strains, meaning an infected person is likely contagious for longer. Virus levels can be as high in breakthrough cases as in unvaccinated people...
  7. Mij

    Long covid after breakthrough infection

    @Snow Leopard It cites a combination of recently obtained, still unpublished data from outbreak investigations and outside studies showing that vaccinated individuals infected with delta may be able to transmit the virus as easily as those who are unvaccinated. Vaccinated people infected with...
  8. Mij

    Long covid after breakthrough infection

    The CDC report said Delta is highly contagious, likely more severe than other variants and breakthrough infections may be as transmissible as unvaccinated cases. The Delta variant spreads like Chicken Pox, so instead of one infection infecting 3, it infects 8 people.
  9. Mij

    New Name For "Brain Fog"?

    My cognitive impairment manifests the same way as my physical impairment. I reach a certain point and can no longer move forward; it's like walking in thick heavy mud. It's full-stop until I recharge.
  10. Mij

    The biology of coronavirus COVID-19 - including research and treatments

    We shouldn't relax when we achieve low levels of cases until we eliminate. Instead, push hard into the finish line. "Living with the virus" is not the right choice. The virus will mutate and we will again have exponential growth.
  11. Mij

    Covid-19 vaccination experiences

    @Rosie So 21 days from the first. Right on schedule :thumbup:
  12. Mij

    Covid-19 vaccination experiences

    @Rosie My arm feels less sore from the second jab b/c I'm moving it around a bit to circulate the blood, the first shot I laid down for hours w/o movement and it became very sore. I feel sleepy too. When is your next jab?
  13. Mij

    Covid-19 vaccination experiences

    Done! The nurses just left. Feels good to be fully vaccinated. @Rosie so glad your first dose went well! Rest and drink plenty of water :hug:
  14. Mij

    Why does it take years to move down a level of ME?

    My illness has become more challenging since menopause.
  15. Mij

    Why does it take years to move down a level of ME?

    In the earlier years when I didn't have orthostatic impairment I was able to stay upright with no problems, read books, knit etc. I was even able to tolerate hot temperatures. I still needed adequate rest in between 'activities' but I wasn't as disabled as I am now with OI/ME. I feel...
  16. Mij

    Dissecting the nature of post-exertional malaise, Hartle et al, 2021

    The immediate pathogenesis of PEM is immune related in my case (allergies or viral) and not from going over my limits. They both cause orthostatic impairment but at different levels. Maybe immediate and delayed PEM are related in some way.
  17. Mij

    How pandemics strengthen links between viruses and autoimmunity

    I've seen long-covid referred to an estrogen-associated autoimmune disease. It seems autoimmune is the new buzz word for post-covid syndrome too.
  18. Mij

    How pandemics strengthen links between viruses and autoimmunity

    @Jonathan Edwards Can I ask what your views are on 'autoimmune Lyme"? thank you. This was published a few weeks ago: https://www.nature.com/articles/s41584-021-00648-5
  19. Mij

    Covid-19 vaccination experiences

    It will be difficult to know for sure though b/c the symptoms are improving very very slowly. But I've had them come back in full force for a day or two.
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