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I've never suspected an autoimmune disease in my case after a viral infection, but there is a high (?) percentage of pwME who suspect they have an autoimmune disease.

Pandemic insight The COVID-19 pandemic has pushed the link between viruses and autoimmunity into the spotlight. Over the past year, research suggesting that people with COVID-19 carry numerous autoantibodies in their blood has been widely reported — although the mechanism at play is as yet...

There is no mention of delayed PEM. I'm interested to know what medications the >10 years pwME took to recover from PEM? My PEM has been consistent throughout 30 years, it has always been delayed, but has worsened from exercising ie OI

I get viral re-activations continuously, I even had fever sores on my lips the day of my Pfizer and a continuing vestibular virus for over a year. I had zero reaction to the first Pfizer except a sore arm. A couple of healthy friends had a fluey/achy-type reaction for 24 hrs after...

Dr. Nancy Clancy on exercise rehab: "giving someone an exercise prescription where they get their maximum heart rate and have them walk for a period of time . . . take 60-70% of that and have them do 20 minutes a day . . . come into the PT clinic once to train them so they can have a...

Now Published: Tolerance of Covid-19 vaccination in pts with SLE(Lupus) in the international VACOLUP study: https://www.thelancet.com/journals/lanrhe/article/PIIS2665-9913(21)00221-6/fulltext

@MeSci You might be interested in Dr. Laurent Arnaud's study trying to identify potential side effects of COVID vaccinations in lupus patients and providing regular updated summaries. https://maladie-autoimmune.fr/vacolup/

"What happens when previously infected individuals are vaccinated? The observations in several studies, including those by Stamatatos et al. and Reynolds et al., are that an impressive synergy occurs—a “hybrid vigor immunity” resulting from a combination of natural immunity and vaccine-generated...

Persons with disabilities have lived experience and should be at the forefront of decision making.

Nice to see you back again :) I get my second dose of Pfizer on the 27th. I'll be thinking of you.

They're advertising vaccines as 'treatment' for ME? Who are 'they'? I'm not understanding what she wrote.

Trouble concentrating is a common problem for those with anxiety, they continue to contradict themselves.

Perhaps you can call your local pharmacist and ask for information on how you can get a vaccine? They are very informative. I had put off my vaccine for months until my local pharmacist informed me that I can book home visits which I wasn't aware of because it isn't advertised on our public...

LIVE now: "Bridging Cellular Biology with Co-Infection Studies to Investigate the Regulation of Chronic Viral Infection"

Comparing seeking help for a broken bone and a complex medical condition is not a very good analogy.

You just have to Google "PEM" and the only hits you get are from the ME community and research. And yet they continue to describe PEM and recommend pacing as though they figured it out on their own.

The paper can reduce a room's temperature by up to 10 degrees Fahrenheit, making it a radical but effective alternative to today's air conditioners, which consume a lot of power. Zheng and his colleagues found that the cooling paper can reduce a room’s temperature by as much as 10 degrees...

I don't think I've ever seen a pwME in a wheelchair suffering from 'extreme tiredness'. Tiredness is a lack of sleep. I believe 90% of the population would be in wheelchairs if this was the case.

Lifemark Canada post-covid rehabilitation and recovery program acknowledges that exercise is not a 'medicine' for ME/CFS or post-viral syndrome , but still believe exercise can be safe and appropriate for post-viral syndrome states. "While exercise can often help, we recognize it is not a...

My sister's first shot a few months ago was AZ, today she got a Pfizer b/c they ran out of AZ. She is over the moon as though she won the lottery lol