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    UK Genome Wide Association Study (GWAS) project - draft website goes live, feedback sought on recruitment plan, and updates

    This. BBC Scotland radio have been supportive of ME and given generally good coverage. CS has been interviewed a number of times and the phone in is good at getting across levels of debility and how life changing ME is. I am sure that there are other local stations too who have done...
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    CAN LINGUISTIC ANALYSIS BE USED TO IDENTIFY WHETHER ADOLESCENTS WITH A CHRONIC ILLNESS ARE DEPRESSED? - Jones, Loades, Crawley et al Dec 15 2019

    But if they did that there would be a distinct lack.of papers!
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    #MEAction Scotland News

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    CAN LINGUISTIC ANALYSIS BE USED TO IDENTIFY WHETHER ADOLESCENTS WITH A CHRONIC ILLNESS ARE DEPRESSED? - Jones, Loades, Crawley et al Dec 15 2019

    Sadly this perpetuates a mindset ensuring that if/ when EC leaves the field everything continues as " business as usual" for a particularly vulnerable patient group. We really need charities/ biomedical researchers to lead on this and expose it for what it is. If it is too uncomfortable...
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    FITNET-NHS Esther Crawley - 5th protocol out now

    Do they not take a hint.
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    NICE Guideline review: Call for evidence on myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome, deadline 16th Oct 2019

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    Ron Davis latest: more evidence of "something in the blood" (Simon M blog)

    Thanks. I feel a bucket load of coffee is needed to get any brain function today!
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    The country that closed its psychiatric hospitals

    This reminds me of an article I read late last year/ early this year. A psychiatrist was tasked with introducing antidepressants into areas of Vietnam. He met with a " village head " to explain how lives could be improved and was taken aback when told categorically that pills were not needed...
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    Junk food 'should be labelled with how long you need to exercise to burn it off'

    All calories are not equal. The body uses different macronutrients in different ways. Depending on your metabolism and genes it may be easier/ harder to burn off fat etc
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    Ron Davis latest: more evidence of "something in the blood" (Simon M blog)

    I have not had much sleep, so this may not be relevant at all. Did healthy controls have IDO mutations ? Graphs in CFS plasma remind me of the bistability " kick in " Did experiment continue longer ( do we know of CFS in healthy plasma ever got to the same impedance level as HC?) ETA what...
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    CAN LINGUISTIC ANALYSIS BE USED TO IDENTIFY WHETHER ADOLESCENTS WITH A CHRONIC ILLNESS ARE DEPRESSED? - Jones, Loades, Crawley et al Dec 15 2019

    There is an obsession with depression and anxiety in children and adolescents. Probably underpinned by the variety of inappropriate scales used HADS CHALDER SF36 These are not nuanced for ME responses. But hey, narrative to reinforce, papers to publish....
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    “Investigating ME/CFS at the intersection of the nervous and immune systems.” Speaker: Dr. Michael VanElzakker Oct 26 2019

    Speaking to my daughter last night/ this morning. She has headaches and facial pain ( seems related to very tight muscles - she feels though as if someone has taken a baseball bat to specific parts of her head) . This also induces nausea , almost like being in shock, and puts her on " alert"...
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    Article: Brain studies show chronic fatigue syndrome and Gulf War illness are distinct conditions

    I wonder if there are some who have moved from one group to another. My daughter did not have OI issues until this year.
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    Trial By Error: Professor Jonathan Edwards’ View of ME (includes discussion of exercise and long-term harm)

    this
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    Machine Learning-assisted Research on ME/CFS

    This may be of some use - Cytochrome P450 and drug interaction ( Flockhart table) https://drug-interactions.medicine.iu.edu/MainTable.aspx
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    ME/CFS services in the United Kingdom

    note the physio section @PhysiosforME
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    Trial By Error: Professor Jonathan Edwards’ View of ME (includes discussion of exercise and long-term harm)

    I have wondered where the physicists are in ME research. Physicists have made a huge difference to cancer research- quantum biology has evolved in response. ME would seem to be a prime candidate for deep molecular work.
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    Surgeons withdraw support for heart disease advice

    Aseem Malhotra the cardiologist has been pretty vocal on this (and statins) for the past few years. A man who knows how to interpret stats https://www.bmj.com/bmj/section-pdf/746405?path=/bmj/347/7926/Observations.full.pdf How do we get him interested in ME?
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    Ron Davis latest: more evidence of "something in the blood" (Simon M blog)

    is it relevant that ME/ CFS cells have a nominally different response in healthy plasma too? ( less impedance) would it be interesting to look at the cells ( ME/CFS in healthy plasma, normal controls in CFS plasma at the crossover point just short of an hour and see what is happening?
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    BBC Radio 4 - Acceptance and commitment therapy -feat Trudie Chalder Nov 2019

    Coyne has tweeted about ACT. I can't remember the gist of it though.
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