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Yes, the pot is self-limiting. It must be divided up - with winners and losers. One issue with our illness compared with M.S is the rate of patients who are in work and earning a salary that can allow them to donate.

This is precisely the thing I am getting at with my comments. I am pretty well-versed in M.E. science and potential leads...but I've never heard of L-form bacteria. It would be good if we could put some questions to Karl.

I'm just angry that we are forced to crowdsource basic research. This is not directed towards anyone who has started these campaigns. Where is the UK charity involvement in this campaign?

We are being asked to donate left right and centre - and that's before taking into account traditional donations to the charities or support groups. Our community has limited resources. I just don't feel this is a sustainable way of doing business. We have a duty to explore and understand why...

With all due respect to all teams that feel the need to go down this route, this crowdfunding is really getting out of hand.

Another paper for the sake of writing a paper.

He said he's doing a full-time PhD which would be consistent with being well or perhaps having the most mildest form of ME/CFS. We don't know the story - it's possible he's mentioned some mental health issues when first enrolling in the service. I know from the personal experience of some...

I must get myself some of those highlighter pens, maybe that's where I'm going wrong.

the more you buy the better the chance you won't die!!!

Someone has complained to the MHRA about Myhill's (quite frankly bizzare) coronavirus page. See the attached screenshot. https://drmyhill.co.uk/wiki/Coronavirus_–_it_is_not_a_death_sentence!_What_do_you_need_to_do_for_viral_survival

Titles are very often the work of editors and not reporters / writers. I'd be surprised if they had any say in it.

Exactly this. Everything is presented as though it is fact. There are many hypotheses in the literature but they are presented as models and/or frameworks and backed up by some sort of evidence. Very different.

Look at slide 5 of Myhill's talk, and tell me why she should be allowed to claim (as if with total conviction and authority) that ME = CFS + Inflammation. Just a nonsensical equation.

Yes, infections after surgery never happen! :thumbup: Her explanations always conclude with a sales pitch.

Also, it's full of people (literally) shitting themselves because she advises taking insane amounts of Vitamin C. And they're really into iodine salt pipes, apparently. Awful.

I'm on the Myhill 'followers' facebook group. It makes me audibly ghasp almost daily. I have a collection of screenshots of some of the most absurd posts on there. It's like pseudoscience bingo. Yesterday, in response to the coronavirus post someone linked to a guy claiming to cure it using...

I'm starting to think that these pieces might be best just focusing on what ME/CFS is, rather than what it isn't. Imagine going to a job interview and spending the first half of the conversation saying "People have called me lazy, untrustworthy, and a shirker, but actually I'm the opposite."...

Would be interested to know how the placebo response rate compares with that in other studies. Is there anyway of comparing this?

Thanks for posting. I had not seen this. Really well put together film.

Christ, he's even got chemtrail stuff on his site. https://klinghardtinstitute.com/environment/shock-claims-about-chemtrails/