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I love weed but it has a very strong effect on many of my symptoms. The effect it has on my musculoskeletal system is profound. It's like all the areas I have had problems with come online. Sometime it has a positive effect, but other times it has made me feel really stiff, sore, and...

"without any real biological source".... why can't reporters get this right. "without any known biological source" is infinitely better.

I asked recently if I could get some help with psychological issues (not serious - just coping with being ill, etc.) and got told if I wanted to sit down with an actual psychologist it would be 'years'. My GP wrote to the mental health team and asked about other options. Of course all that's...

What I don't understand is what these people can offer that isn't available on the internet? I imagine what benefits users of this service the most is not any actual 'treatment', but rather having someone there who cares and can listen.

you notice an effect?

I am really skeptical when it comes to people seeing a noticable effect from herbal or nutritional supplements. Do people really take turmeric, for example, and notice an effect?

I have just seen this new paper on Twitter. A timely reminder that imaging and the subsequent analysis is not an exact science. https://www.biorxiv.org/content/10.1101/843193v1 Abstract Data analysis workflows in many scientific domains have become increasingly complex and flexible. To assess...

I can relate to this. I had years after my initial trigger but before ME onset where I knew I wasn't well. I would be in work and just unable to sit at the computer without pain in my shoulders for less than an hour. I had to keep getting up, I'd often go swimming midday to loosen up. It felt...

Thanks for your involvement and work Andy. I didn't realise this announcement was being made today. I've just seen some social media stuff from Action for ME. I hope even at this early stage there will be a collaborative effort to promote this project to the furthest reaches of our community...

When I had acute appendicitis in 2015, the results came back that it was a rare case of granulomatous appendicitis - with a prevalence of order 1% of all appendicitis cases. "Granulomatous appendicitis (GA) is a rare form of appendicitis described to occur due to varieties of causes such as a...

what the merry fuck is this pile of shite.

exactly. i sleep around 9 hours a night all the way through. i often wake up feeling 'poisoned'.

I think it's plausible that impairment of this sort of mechanism could play a role in M.E.

https://www.sciencenews.org/article/sleep-may-trigger-rhythmic-power-washing-brain?fbclid=IwAR04YDRSjisQU_s9kY3aJLeB2KxdExrcE2mULFoE_kbR1fR3CfvZfxBjeVE Every 20 seconds, a wave of fresh cerebrospinal fluid rolls into the sleeping brain. These slow, rhythmic blasts, described for the first time...

So another paper from the Griffiths team. I hope they are going to be applying for some of the recently announced funding in Australia. At the same time, it would be nice to see M.E. research spread to other groups/universites in Australia.

Are there studies of searches for enteroviruses in the CSF of M.E. patients?

https://www.ucsf.edu/news/2019/10/415696/missing-virus-detected-dozens-children-paralyzed-polio-illness?fbclid=IwAR0ZxjldL12seSHAsSPsa2ynYLfKVUTWfyXryLHq03HmMv-bPQ2ZVwkYsP4

They've got the party-poppers out again. Very pleased we have a team working so hard on this but I hope these results won't be oversold...

I was just reading this wiki page on Cortical Visual Impairment https://en.wikipedia.org/wiki/Cortical_visual_impairment The overlap with some of the visual problems in ME stuck me. I have no doubt that most the visual issues in M.E are due to brain/visual processing problems. I really hope...

you should see the ME/CFS Facebook groups.....