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Here is a picture of my hand when the area below the thumb is swollen and the vein is bulging.

I don't get the numbness, but I'm having real problems with the muscles in my hands below my thumb joint. The area goes slightly hardened and swollen, and the small vein there bulges. It started 18 months ago when I was working - probably triggered by typing and repetitive actions, but no doubt...

I don't know if this has been mentioned: Abnormal blood lactate accumulation during repeated exercise testing in myalgic encephalomyelitis/chronic fatigue syndrome. https://www.ncbi.nlm.nih.gov/pubmed/31161646

I think this is a plausible. Of course, there is the issue: are they saying Chronic Lyme could be ME, ME/CFS or CFS?

this was quite a shocking read recently https://phys.org/news/2019-09-turmeric.html

I may have gone to this combined service because they have physio and MSK teams which could have been useful. But the main reason is indeed the benefits issue. I guess I can say I asked my GP to refer me but the service has closed!

I just rang the number on the page. Not recognised. I then rang a different number—the one for 'Central Lancashire Moving Well'—and was told the ME/CFS service was indeed only for those registered with a GP in certain areas. Certainly not a 'Lancashire' ME/CFS service. Therefore, there is no...

This is my local service now https://www.lscft.nhs.uk/clmw-cfsme. "The CFS/ME Service aims to provide supportive, holistic patient centred advice to aid acceptance, education and self-management for adults with mild or moderate CFS/ME in Lancashire." It's been grouped, along with physio and...

I don't think that's the case. My GP would have been honest. I think it's because the provision has recently been changed. They like to pass the ME/CFS services around and regroup them etc. It drives me nuts, and yes, probably the GPs too.

I'd have thought they would have a system that directs the referral. Then again, this is the NHS and that would be far too easy!

It's strange. I asked my GP about the service I would be referred to, having had an idea already, and he came back saying one didn't exist. I now see this service is still going. Wonder why/how he missed it...

Does such a list exist, anywhere? I want to understand how patchy the system is for us. Thanks in advance. edit: have found a list here: https://www.meassociation.org.uk/nhsspecialistservices/ Not sure how accurate it is.

I've had an MRI appointment through and it's for a spine/cervical scan as well as a head scan. Quite surprised by that - was just expecting a head scan. Don't expect anything to be found, but glad the spine MRI will be done too.

Glutamate is indeed a neurotransmitter. Glutamine is a precursor to glutamate. Glutamic acid is another amino acid. It serves as the precursor for the synthesis of GABA, which is the inhibitory correlate to excitory glutamate. But glutamate is the metabolic precursor of GABA. It's all very...

until we have more people studying how we achieve recovery, rather than how we feel about recovery, progress will be at a snail's pace.

oh christ. just when I thought the Chalder group's research couldn't get any more pathetic, they add a nice dose of identity politics.

https://www.bbc.co.uk/sounds/play/m0008ps8 From today's show. At 1:10:00 onwards there is a discussion on glandular fever that soon touches on M.E. The discussion is actually quite good - the expert (Dr Sarah Jarvis) describes the risk of glandular fever developing into M.E. and describes M.E...

Yep - I get that. I've seen ENT specialists about it over the years. My point is that it shouldn't be simply an ENT issue. Ironically, the end point of presenting with unexplained tinnitus is an ENT specialist sending you for an MRI scan.

I had my appointment yesterday. As expected, it was pretty underwhelming. The consultant wasn't personable in the slightest and came across as dismissive. There was no in depth discussion of my history, and he paid no real attention to my ME diagnosis. He conducted some routine, very...

:nailbiting: