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  1. InitialConditions

    Assessing cellular energy dysfunction in CFS/ME using a commercially available laboratory test, 2019, Morten, Newton et al

    Scientific Reports is a Springer Nature journal, but it is a tier or two down from the big Nature journals. It is usually where papers rejected from the leading Nature lines end up. Still, a respected journal.
  2. InitialConditions

    Assessing cellular energy dysfunction in CFS/ME using a commercially available laboratory test, 2019, Morten, Newton et al

    this is the original paper: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2680051/ Could problems with storage and sample time really account for the original results, which show clear demarcation between HC and PWME, and also strong correlation between degree of disfunction and illness severity?
  3. InitialConditions

    Assessing cellular energy dysfunction in CFS/ME using a commercially available laboratory test, 2019, Morten, Newton et al

    Exactly. She's making a killing down at Myhill farm. The tests provided are extremely expensive, and the results looked so convinving in the paper she published. it seems this was all due to sampling time and storage?
  4. InitialConditions

    Bristol CFS/ME clinic researching patients' problems with Chalder Fatigue Questionnaire

    If Chalder and co didn't have enough rubbish papers based around that damned questionnaire, they can now add another to the list about how to complete the god damn thing. How very meta.
  5. InitialConditions

    Induced coma

    The Brexit shambles has had me thinking the same thing recently.
  6. InitialConditions

    Maybe It’s Lyme What happens when illness becomes an identity? (2019) The cut - Molly Fischer

    yes, the lena dunham tattoo ("sick" written on her neck) is shown in this article.
  7. InitialConditions

    Maybe It’s Lyme What happens when illness becomes an identity? (2019) The cut - Molly Fischer

    this is essentially what I was getting at. there are so many who are marginalised from mainstream society and they can become very bitter, defensive, and genuinely unable to have a normal conversation. This really isn't helpful to anyone. Perhaps we just see the worst sides on social media.
  8. InitialConditions

    Maybe It’s Lyme What happens when illness becomes an identity? (2019) The cut - Molly Fischer

    https://www.thecut.com/2019/07/what-happens-when-lyme-disease-becomes-an-identity.html This is a very long read and I've only skimmed through, but this is a topic I hoped someone would write about. From the comments it seems the article could be somewhat dismissive to patients. This doesn't...
  9. InitialConditions

    Brain throwing a party before bed - not pleasant

    I'm back going through these horrible brain symptoms that come about for a few days every few weeks or so. I just hate it. Another thing I forgot to mention was 'brain surges' lasting a few seconds and coming about periodically when in bed trying to fall asleep. I think I've seen these elsewhere...
  10. InitialConditions

    New Statesman: How mindfulness privatised a social problem

    I knew when I saw this link that Mark Fisher would be mentioned somewhere in the article. For those who want to read more about this from a cultural and politico-economic standpoint, I recommend Mark's essay 'The Privatisation of Stress'...
  11. InitialConditions

    FMT Study: A Retrospective Outcome Study of 42 Patients with Chronic Fatigue Syndrome, 30 of Whom had Irritable Bowel Syndrome (2019) Kenyon et al.

    https://www.sciencedirect.com/science/article/pii/S2452231719300077?via=ihub&fbclid=IwAR3xQzNGvlwamXbx_F9ZKohGcOiIMGOIbXnz4WgVwZqScW3c-CoS9zTRx64 Note that this is a study written by the owners of the clinic where the FMT is done. I'd take with a pinch of salt.
  12. InitialConditions

    Anyone any experience with probiotics?

    This is the same as all that herx stuff everyone always puts a worsening of symptoms down to. probability is the person is just going through a rough patch!
  13. InitialConditions

    Anyone any experience with probiotics?

    oh no. sorry to hear this. do you think the neuro symptoms were from Symprove or could they be from other factors? this doesn't fill me with much hope!
  14. InitialConditions

    Anyone any experience with probiotics?

    Have recently started a course of Symprove. I have a three-month supply. I'm on day 6 and I have felt very washed out this week - the fatigue has been quite brutal and has been present throughout most days. I need to stick with it because I have no firm evidence that I'm not just going through...
  15. InitialConditions

    UK benefits advice: Universal Credit and limited capability for work

    Thank you. I wasn't blowing my own trumpet! I just mean I have the resources to at least attempt to navigate the system.
  16. InitialConditions

    UK benefits advice: Universal Credit and limited capability for work

    I may do this. I did talk to someone before starting my claim. I can manage the system pretty well. I'm intelligent and well enough to understand the system. I just wondered if anyone had been in this, or a similar, position. I do however regret not making it specifically clear that I could not...
  17. InitialConditions

    UK benefits advice: Universal Credit and limited capability for work

    Thanks Adam. Perhaps I wasn't clear in my original post because I didn't want to go into too much detail. As I have just started to claim UC I am in the self-employed start up year where the minimum income level doesn't count. So it's not so much what I'm expected to work (I could get round that...
  18. InitialConditions

    UK benefits advice: Universal Credit and limited capability for work

    Hi all, I am looking for advice RE: Universal Credit and limited capability for work. A few months ago I started claiming UC. I work freelance and despite suggesting that the maximum I work in a given week was around 10 hours, the option of limited capability for work did not come up, and I am...
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