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  1. rvallee

    Germany: IQWIG Report to government on ME/CFS - report out now May 2023

    It's obviously not. But since PACE is the meat of this eminence-based evidence, they feel the need to defend it. Of course it's always an issue. It's even a common issue, this is why even the most fervent promoters of psychosomatics will dismiss any study featuring this flaw where they don't...
  2. rvallee

    “I Am Not the Same as I Was Before”: A Qualitative Analysis of COVID-19 Survivors 2022 Duan et al

    It's the bad kind. There is no need to ask the experience of illness because the experience of illness is known and it's bad. This is trying to deflect from the illness and onto identity and other useless stuff, putting as #1 the mind-body connection is a big tell that the researchers directed...
  3. rvallee

    Germany: IQWIG Report to government on ME/CFS - report out now May 2023

    Well at least one useful thing is the confirmation by another health authority that almost all BPS research on ME is of such terrible quality that it shouldn't be used. It's so bad, in fact, that it obviously should end, considering that after decades they are all basically identically bad, all...
  4. rvallee

    Sleep symptoms are essential features of long-COVID – Comparing healthy controls with COVID-19 cases of different severity 2022 Merikanto et al

    This doesn't give it enough credit. We've known this for decades, but in the case of long haulers, on the whole they understand this within months at most. Complete amateurs, most with no medical training, understand in a matter of months what medicine is still incapable of understanding after...
  5. rvallee

    Covid-19 vaccines and vaccinations

    It still makes sense for healthcare workers to be protected from severe illness, their exposition on the job demands it. But the messaging was all politics and PR and ended up doing far more harm than good. Lies catch up. That's why public health crises are better handled telling the whole...
  6. rvallee

    Covid-19 vaccines and vaccinations

    From many comments I have seen from real medical professionals, there is a view out there that being infected but not feeling symptoms is not being infected even if you transmit the virus to someone else, because they seem to think that it's impossible to transmit a virus in those circumstances...
  7. rvallee

    Cardiopulmonary Exercise Testing and Persistent Breathlessness in Post-Acute COVID Syndrome, 2022, Sanville

    Today I saw an article talking about a "new symptom" that was discovered by scientists: exercise intolerance. Probably this study. Good freaking grief. Patients have been pointing this out from pretty much day 1 and even with all of this they miss out on what actually matters: it's not...
  8. rvallee

    The Chrysalis Effect

    The creep of pseudoscience into medicine is a massively unreported scandal. Peak post-Truth era stuff.
  9. rvallee

    Orthostatic intolerance and neurocognitive impairment in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), Gaglio … Jason, 2022

    Damn, that would be so useful to study. To know what changes and how quickly. So much information we could have if only it were done right. Do other symptoms improve? Very likely there are several types and factors involved. It's also weird how after sleeping, essentially being horizontal for...
  10. rvallee

    The Costs of Long COVID, 2022, Cutler

    It's mostly that it's the step of last resort. Especially in the US, private insurance is the first step, then there are (usually state) programs for temporary disability and only later SSDI with nothing in-between, federal disability often happens many years into it. It's similar here in...
  11. rvallee

    Co-designing personalised self-management support for people living with long Covid: The LISTEN protocol 2022 Heaton-Shrestha et al

    Obviously self-management is not advocated by patients, it's all there is because the medical profession has gone AWOL from this, it represents the complete absence of professional medical care. This is like saying that not thinking about eating is advocated by people in a state of famine...
  12. rvallee

    HIV, HSV, SARS-CoV-2 and Ebola Share Long-Term Neuropsychiatric Sequelae 2022 Büttiker et al

    Uh huh. Same old wine in the same old bottle. Just the same old mindless nonsense. Actually Long Covid should have forever ended that debate. It's a massive embarrassment what is happening right now.
  13. rvallee

    The Costs of Long COVID, 2022, Cutler

    What treatment of ME? It's not treating ME that costs $9K per year, it's not even treated at all in most cases. And the economic loss per person is far greater than $9K on average, it not only has to account for loss of income (at a median of something like $40K/y in the US) in addition to other...
  14. rvallee

    An explanatory model of depressive symptoms from anxiety, post-traumatic stress, somatic symptoms, and symptom perception 2022 Villarreal-Zegarra

    Why were the 97.8% hospitalized if they didn't have symptoms? How is poor sleep or low energy a mental health problem in hospitalized patients? Back pain is mental health? How is worry considered a mental health problem in hospitalized patients? I would argue that not worrying one bit while...
  15. rvallee

    Fatigue as the unconscious refusal of the demands of late capitalism, 2021, Diserholt

    Ah, yes, fatigue, famously did not exist before capitalism. Of course. Very smart analysis. You feel the genius radiating from it.
  16. rvallee

    How growth mindset shrank

    Overhyped claims. In psychology? Well, I nevah. Faints Victorianly
  17. rvallee

    Can psychiatry make medicine better? Michael Sharpe, 29 Nov 2022

    We know the answer to that. It could, but not as long as people like Sharpe are in it, the poster child for everything wrong with medicine.
  18. rvallee

    Orthostatic intolerance and neurocognitive impairment in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), Gaglio … Jason, 2022

    My memory is not even 10% of what it used to be. Not everyone, but when it does it's massive.
  19. rvallee

    Orthostatic intolerance and neurocognitive impairment in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), Gaglio … Jason, 2022

    I don't think limiting this to posture makes sense. My brain fog does not vanish if I am laying down and I've never heard anyone say that so it's at least rare. It's definitely worse if I'm standing up, but it doesn't resolve by being horizontal. It's an aggravating factor for sure but not the...
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