Search results

There was a lot of that at first. It was mostly that in the first year. So much hope. People expect experts to do their thing, it's self-evident. Haven't seen much of that hope in at least a year. Maybe the newer ones, most LC cases will last for a few months so it's continuously renewed. Even...

Seems expected considering what usually happens when errors are pointed out: nothing. We're not the only ones noticing this, even, uh, traditional, skeptics find the same frustration, that they chase errors and find no interest from editors to address them. Once published, it seems that it takes...

It's pretty shocking to see how despite the millions suffering from LC, there is still so very little advocacy going on. At the most I'd say it doubled the ranks of patients active on social media spreading awareness. From dozens of responses to... a few dozens more. The responses are...

If anyone finds it weird how there can be low unemployment with high number of disabled people, that's because there are several calculations for unemployment figures (to account for students, retired, etc.) and the one that is typically used doesn't include people who are disabled without being...

Pretty good and accurate overall in terms of background and descriptions. I still don't see what this has to do with mental health professionals other than that the medical profession is negligent and there is simply no way to change that. What is described here is mostly accounting for the...

Disabled people used to be shown in zoos. This isn't much different from this, just the medium has changed a bit and society is more prosperous, raising what rock bottom is for most. I don't see a reason to do debates like this. There's no winning such a debate, it's purely for the...

It must be... at least 3 times as big!

They keep trying to get the dogs to eat the paperwork but they just keep throwing up and it's a mess. Probably.

None of the numbers they cite here are even real. They mean absolutely nothing. What nonsense.

The void. I can't see it as a bad thing that some academics are willing to fill a void that is normally only occupied by us, where as @BrightCandle pointed out we are doing much of the same things: asking ourselves questions and refining those questions because no one is asking them formally...

There have been many similar polls, including from this person who has a PhD in pharmacy. They were pretty much all null and most had many negative reports. Mestinon seemed to be particularly disappointing. Almost all were busts, aside from antihistamines, IIRC. The person behind this account...

Regular academia is capable of moving this quickly, it's pretty much the norm in early stage research. Getting research grants to do RCTs is not supposed to be the first step in research, a problem with chronic illness research is that no one has discretionary budgets they can use for it to do...

It's not silly, just speculative. Quantum tunneling is a well-known phenomenon to computer engineers, it's basically one of the biggest hurdles to building computer chips because of the wave nature of quantum field fluctuations. Processors are built out of wires, but fields radiate and when...

And the dude is retiring. His last professional effort as an expert in clinical evidence is pushing a N=1 narrative that relates to a MLM cult-like business that is basically 11/10 on the pseudoscience scale and "enabled" him to overcome better than 50:50 odds. The problem here is a system that...

Oh, that could be just any PhD candidate in psychology from Norway. Such a mystery. Did SaS ever say anything about the LP? Do they even know what they are promoting here?

Interesting result. Done and delivered quicker than it would take to sign the paperwork to get preliminary approval for a formal study. Even with dosage. Can't even think of a study that had such stark results. In the early days, say the first year, of Long Covid, there was a flurry of...

The title doesn't even make sense, sleep is not a main issue. They're totally mistaking fatigue for tiredness because of poor sleep, are they? Because they're sleep experts and as usual only see what's happening from their perspective in their immediate environment. Oh, FFS. Experts are...

Seeing how many people recovered from the worst of what brain fog can be, this has been obvious for a while now. It's good that experts are seeing the obvious but it's been obvious from patient forums for at least 1.5 years. And that makes it especially frustrating because all of this is...

"Living" systematic reviews sound more like a PR thing. That was supposed to happen for Long Covid and they are basically zombies already, barely 2 years old and already abandoned. Even recent updates to early guidelines on Long Covid are devoid of any learning. Frankly the whole systematic...

I saw quite a lot of that about 1.5-2 years ago on the long haulers sub-reddit. Not necessarily Perrin but lymphatic massages. Not about fatigue, though. No idea why they decided to go for that, seems arbitrary as heck. I guess it's the damn "main symptom" thing again. So damn self-defeating...