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  1. rvallee

    Oxytocin, the panacea for long-COVID? a review, 2022, Diep et al

    In hindsight, building academia on the need to publish as many papers as possible, regardless of quality, may not have been the smartest of ideas.
  2. rvallee

    The associations of long-COVID symptoms, clinical characteristics and affective psychological constructs in a non-hospitalized cohort, 2022, Ocsovszky

    What this shows, bizarrely, is that these healthcare professionals are completely baffled by the concept of illness, and genuinely cannot understand that asking sick people how they're doing will yield the expected response of: not great. As in literally the entire idea that being ill is a bad...
  3. rvallee

    USA Centers for Disease Control (CDC) news (including ME/CFS Stakeholder Engagement and Communication Calls) - next call 4 Dec 2024

    They won't admit they were wrong. At this point it must have to do with liability, as long as they don't admit they were wrong, ME can continue to be suppressed. There is precedent for class-action lawsuits about medical advice that continued after it was known to be wrong. Until it's admitted...
  4. rvallee

    I was in pain for years. After I was repeatedly told I just had ‘bad periods’, a giant cyst was found on my ovary. By Holly Bourne. The Times (London)

    This is ominous. For years UK physicians said the guidelines bound them about ME. Turns out it's basically arbitrary and services just do whatever they feel like doing. It's frankly hard to find areas of healthcare that aren't massively broken. In Canada we don't really have national...
  5. rvallee

    Peptic ulcer and the discovery of Helicobacter pylori - from skepticism to the Nobel Prize

    The asymmetry of bullshit in action. Once something wrong has gotten its legs on, it takes disproportionate efforts to slow it down before it can be replaced. It's sad that not only does it also apply in medicine, it seems to be especially strong because of the rigid hierarchical nature of...
  6. rvallee

    Trisha Greenhalgh on ME/CFS and Long Covid

    LOL. "I'm going to continue blocking". Later on write tweet saying "Don't just block people". Amazing.
  7. rvallee

    Open Using activity tracking and just-in-time messaging to improve adaptive pacing in people with long COVID: a pragmatic randomised control trial

    Says everything. Little chance this produces anything useful, or that they understand the basics of what's going on. It's not a freaking treatment anymore than avoiding smoke is a treatment for asthma. This whole paradigm of pragmatic trials is a useless mess, too many factors to take into...
  8. rvallee

    Who is Simon Wessely?

    GLOMAR. Figures. Would be useful to revisit this, in light of the official line having been (possibly) debunked. What matters anyway is that it was just an official lie.
  9. rvallee

    News from Scandinavia

    Wow, OK. Thank you! I'm seeing similar things back and forth lately and it seemed relevant, all about RN's conflicts of interests. It's frankly a bizarre letter, talking about prophecies (it's been 2 years, this isn't the distant future) and pre-empting... something that's been happening for 2...
  10. rvallee

    News from Australia

    Long COVID clinics likely to be required across the country https://www1.racgp.org.au/newsgp/clinical/long-covid-clinics-likely-to-be-required-across-th ‘We know from the experience overseas that people were going to get long COVID, and we believe that now we’re playing catch up and it’s...
  11. rvallee

    Trisha Greenhalgh on ME/CFS and Long Covid

    See, she only blocks pwME because of abuse. Only reason she blocks people, is what she says. Or do we fall under disinformation? Unfortunately, few people can ask her, being blocked and all. It appears though that she is also blocking minimizers and other BGD types.
  12. rvallee

    In which way could Psychiatry and Psychology help investigate ME/CFS (and what exactly is Neuropsychiatry?)–Discussion Thread

    Probably nothing without massive reforms. Even most of the DSM constructs don't have much validity, are too superficial. The technology just isn't there yet, psychiatry is basically at the stage genetics was before the discovery of DNA, along with the technology to do something with it. It...
  13. rvallee

    Who is Simon Wessely?

    Why is a psychiatrist in charge of a multi-symptom chronic illness..?? https://www.whatdotheyknow.com/request/why_is_a_psychiatrist_in_charge Dear Ministry of Defence, Gulf War Syndrome & Prof Sir Simon Wessely. It has been shown time and again that Professor Sir Simon’s published assertions...
  14. rvallee

    British Medical Association: "Known unknowns, and as yet medically unexplained diseases" by Dr David Strain

    I've heard a lot about this "science follows the evidence" thing. I'd love to see it in action one day, it's very slow going. Because it may be mere correlation, but there's no shortage of evidence to follow, if only bureaucratic paralysis could just stop getting in the way, and possibly stopped...
  15. rvallee

    Is there a link between allergies and ME/CFS?

    Copied post I've heard a lot about this "science follows the evidence" thing. I'd love to see it in action one day, it's very slow going. Because it may be mere correlation, but there's no shortage of evidence to follow, if only bureaucratic paralysis could just stop getting in the way, and...
  16. rvallee

    MElivet - Blog posts by Nina E. Steinkopf

    Not a credible source but from past interactions, they seem to know Vogt personally and interact with, so maybe just a slip.
  17. rvallee

    Long Covid in the media and social media 2022

    Oh, wow. Talk about not getting your money's worth. How did they manage to waste this much on absolutely nothing? Basically a few mobile apps, pamphlets and literally clinics without doctors. Healthcare seriously needs auditing. There is massive misuse of funds happening. Spending money on...
  18. rvallee

    Rehabilitation Interventions for Post-Acute COVID-19 Syndrome: A Systematic Review, 2022, Fugazzaro et al

    Findings don't advocate for something, people do. The findings here absolutely do not support that. So what is this advocacy doing here? This is explicitly advocacy, out of such a small number of biased low-quality trials. Especially in light of plenty of evidence that remissions and recoveries...
  19. rvallee

    Validation of child-adapted short scales for measuring gastrointestinal-specific avoidance and anxiety, 2022, Lalouni, Chalder et al

    This dowsing rod was tested on that other dowsing rod and they both agree therefore dowsing rods work. In rod we trust! Shmart. Seriously, in what way is this different from saying that a short-form questionnaire matching your personality to a Lord of the Rings species yields the same answers...
  20. rvallee

    UK Parliament: ME/CFS Announcements: Statement by Health Secretary Sajid Javid, 12 May 2022

    Radical change should naturally exclude those who built the thing that needs to be radically changed. If it's serious, they will be banned, have nothing to contribute anyway.
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