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Interesting points. I think the advice given to FM patients is to do some form of exercise, whatever is tolerated. Sometimes GET is mentioned. But it is assumed that FM patients, in general, have much more tolerance to exercise (however mild) than ME patients (in general). CBT is the answer to...

Back in the day (1999-2000) when I finally applied for US social security disability, I first had to exhaust 6 months of state disability. And prior to applying for social security disability (federal), I also went through a vocation rehab program run by the state to exhaust all possible...

Great if you can be taught to ignore chronic pain (mostly used on chronic back pain). The trick must be to convince yourself that you are the cause of the pain or the pain continuing. If your nerves are churning out aberrant pain signals and won't stop doing it, though drugs mask that effect...

Copyediting problem or maybe it's the Chrysalis copy editing effect: M.E. is how E.l.a.i.n.e. punctuates it.

Wow, oracle! Seventeen experts said yes or no to the surveyor's choice of non-pharma modalites such as magnetotherapy, cupping, acupuncture, and the usual suspects: the memes of aerobic exercise, mindfulness (don't you love it), and sleep hygiene. why the emphasis on non-pharma? Got a...

@Hutan Interesting career trajectory this Dr. Jason Busse. Undergrad degree in microbiology. Masters in molecular and medical genetics. Chiropractic professional degree (why?). Then a Phd from McMaster's in epidemiology (these are on his Linked-in account). On the Chronic Pain Network website (...

Bottom line is that fibromyalgia contains much more complexity than CBT can begin to work with. CBT believes in Santa Claus or that they are Santa Claus. That all the symptloms and sequelae can be overcome.

Purpose of this loose pilot study seems to be to compare to in-person CBT vs this app (called Fibroline, originally developed in a pediatric pain department). Not a lot of subjects. No detailed knowledge of subjects (whether or not they were using other pain control measures, for example)...

I've planned my snappy comeback if I am ever reproached about my mask: "I'm immuno-compromised."

I must have been tripping. You're right it's caregiver. I knew I was 'off' with the caretaker mention.

Yes, a dialect thing: in the US, it is "caretakers." Those who take care of someone. We'd have a "custodian" take care of the furnace in a school. But there is "custodial care" also, which I'm not sure means what except that it is caretaking.

Of the 425-450 US people dying per day, half are vaccinated. Dr. Griffin (latest microbe TV podcast 9/18/22) said that if Paxlovid (which he says is given out by doctors to only 1.5% of the eligible in the US) were given to these vaccinated symptomatic patients (200 or so per day), the death...

In Dr. Daniel Griffin's podcast this week (he's on microbe TV), he gave his opinion that declaring the pandemic over was way too US-centric, that millions globally lack vaccines and immuno-modulating drugs (like Paxlovid) to treat more serious cases.

@mango, can you rate the Loop Quiet ear plugs for me? How do they compare to using foam-type, cheap ear plugs and wearing Bose noise cancelling headphones in addition, over the ears with the foam plugs in place. My aim is to be deaf to sound.

As you can see from the posts, everyone reacts differently. I use capsaisin because it has been shown to have effectiveness in knee pain (osteoarthritis) and also it does dampen my pain in different areas and works quite quickly. It's not as effective as a drug for severe pain, but moderate...

TWIV has had some great podcasts about this subject. Vincent Rancaniello Phd has done research with polio. https://www.microbe.tv/twiv/twiv-931/ It's about oral polio vaccination in other parts of the world. Oral polio vaccine causes some cases of polio in other countries and that's what...

I have fibro pain which is searing, or rather like Thor up there twisting my muscles into a knot as hard as he can. Or like pulled muscles everywhere. I use every day: microwave heat sac, heating pad capsaicin cream (0.1%) 3 applications a day, trying not to get it into eyes, or other mucus...

ka-ching

This study reminds me of one done years ago by a grad student. And what was the magic ingredient interrogated? Cherry juice.

This group in a university psychology department in Spain do a lot of studies about FM and walking and pain and castastrophizing and why won't patients just follow our prescription of walkikng. From now on, when I read the word "catrastrophizing," I know that it's an objective state where...