Search results

  1. shak8

    Aphaeresis/ Apheresis (for removal of microclots)

    Dialysis which I've performed removes excess electrolytes like potassium and sodium and adds a bit of bicarb buffer to the acidic blood. Excess urea is removed (patients smell a bit bad when they come in for their treatments). Proteins, like albumin are large and do not cross the membrane of the...
  2. shak8

    Long Covid in the media and social media 2022

    I left a comment on the TVIV website on the "leave comments" section addressing your concerns, I think. The virologists and Paul Offit should not have been so cavalier in their ha-ha it's only fatigue comments and laughter--it hurts and it's wrong. All they need to say is: we are not clinicians...
  3. shak8

    Long Covid in the media and social media 2022

    I would count their facetious treatment of fatigue as a symptom of their lack of expertise in the area of long covid. Everyone in the panel has her or his limitations in how much they know and dependent on what their area of specialization is. Offit is a vaccine expert. Well worth listening to...
  4. shak8

    News From Jarred Younger / Neuroinflammation, Pain, and Fatigue Laboratory at UAB, From Aug 2020

    Younger has already done trials of various herbs, a shot-gun approach, if you will. He has already done small naltrexone studies. The "let's trial any substance folks say works" does not inspire confidence.
  5. shak8

    USA: Massachusetts ME/CFS & FM Association news

    Making a general statement here. There's a big contingent of American woo in advocacy organizations and even some university research departments. The dissatisfaction with the way the medical establishment 'operated' 20 years ago or so, or the limits of what medicine knows and can do, led to...
  6. shak8

    I wrote a short story about ME/CFS

    Great imagination. Kind of shook me in a good way.
  7. shak8

    PEM for those who are, or were, mild sufferers, how would you describe it?

    I think I experience PEM occasionally when overdoing or when getting sick with a bug. I resist the IOM diagnosis of ME because I don't feel severe fatigue at least half the time. Have no OI either. Maybe there is in me an overlap of FM/ME. But anyway, I had been coping with recent anxiety by...
  8. shak8

    Clinical overlap between fibromyalgia and myalgic encephalomyelitis. A systematic review and meta-analysis, 2022, Ramírez-Morales et al

    We have no molecular mechanisms identified for either illness to distinguish them. In people with systemic autoimmune disease there is a lot of co-existing diagnosis and symptoms of FM. Does one cause the other, or are they related in molecular origins, are some of the symptoms too similar to...
  9. shak8

    Distinct CholinomiR Blood Cell Signature as a Potential Modulator of the Cholinergic System in Women with Fibromyalgia, 2022, Christoph Eracher et al

    Anti-cholinergic treatment is effective in FMS patient subgroups, and cholinergic signaling is a strong modulator of CNS and PNS immune processes..." news to me. Which drug might that be? This research (and I have absolutely no competence in assessing it) seems overly speculative and...
  10. shak8

    Specific documents on CFS and fibromyalgia from a US agency (Job Accommodation Network) (2008)

    Nice to see some updated accommodations suggestions in the above since my time consulting the list in 1999 when I had to apply for disability (FM).
  11. shak8

    Article in Verywell: An Overview of Central Sensitivity Syndromes What It Is and Treatment

    I love how she puts OCD in that category of CSS. Why not toss in some watermelons?
  12. shak8

    Short-Term Magnesium Therapy Alleviates Moderate Stress in Patients with FM: A Randomized Double-Blind Clinical Trial, 2022, Nicolas Macian et al

    Why study stress in FM patients---it seems harder to assess and too general a category. You can have a stressful situation that is separate from pain in FM. It may interfere with self-care, but it may not in itself be a pain generator. I would like to see a study with this low dose, slow...
  13. shak8

    Kale is not a cure—Kale ‘miracle food’ paper retracted for being ‘word salad’

    Unique form of English used. Not even an attempt at translation. Hilarious! To add though, I'm being chauvinistic. When researchers in other parts of the world are forced or encouraged to publish scientific research in English and they haven't had the educational opportunity of studying English...
  14. shak8

    Patient Perspectives of Disease Activity, Medications and Substance Use in People with Fibromyalgia, 2022, Khoo et al

    Credit to them for qualitative research, listening to how the illness affects these patients. I am somewhat heartened by this. Except this information is already available and valid if one were to do a review of medical literature. Why repeat it, why not spend the money or brain power (ahem) on...
  15. shak8

    Remedee's endorphin stimulator for fibromyalgia gains FDA breakthrough status

    I don't think 'peripheral stimulation' has anything to do with transcranial magnetic stimulation (which is used to treat severe depression and is being studied for use in FM and other disorders). This remedying thingie sounds akin to a TENS unit albeit with different electrical properties. But...
  16. shak8

    Remedee's endorphin stimulator for fibromyalgia gains FDA breakthrough status

    I'm sorry but Remedee for the name of a 'serious' medical device? May your wishes some true.
  17. shak8

    Atlantic article on paxlovid for Long Covid

    Interesting effect on long-covid for some. Paxlovid is to be used (per Dr. Daniel Griffin on TWIV, latest episode May 7, 2022) at least here in the USA, for people over age 65 if they have a positive test. Or anyone who has significant co-morbidities (diabetes, heart or lung disease, obesity)...
  18. shak8

    Shilajit

    I wouldn't trust anything in that website as accurate. It appears to be a promotion/sales related website. Healthline, indeed.
  19. shak8

    [BBC News] Exercise is good for joints with wear-and-tear arthritis

    I did not read the generic article or what it refers to. I was reacting to what I thought I knew about knee arthritis. What I base my decisions on what to do, what meds to take is the 2019 OARSI guidelines. But surely you are right that it's mere clinical hearsay about synovial lubrication...
Back
Top Bottom