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Patient advocate Nina E. Steinkopf has written an excellent reply to the article which just got published on the newspaper's website: Den stadige svertingen av ME-syke google translation: The constant slandering of ME sufferers quote: It is not without reason that ME patients want to know...

Professor Reme was btw the same who recently was out in the media saying ME patients were out to get them, that they couldn't publicly announce an ME-seminar she organised, and that the seminar had to have the police on standby. Patient advocate Nina E. Steinkopf contacted the police and they...

A weird article today in an newspaper for academia and research. Professor in psychology Silje Reme complains of how absurd it is that people are using their right to access for information regarding their study on Lightning Process. Research director at the Norwegian Institute for Public...

The webinar was organised by the Norwegian ME Association

This was a very good interview with Hannah Davis and Dr. Bhupesh Prusty on Long Covid and ME. Available as audio and transcript. Science Friday Here's What We Know About Long COVID Three Years Later

Long Covid article from The New York Times with brief mention of ME: Long Covid Is Keeping Significant Numbers of People Out of Work, Study Finds quote: “A lot of people can’t afford to not work and so they’re working when they really shouldn’t be, continuing to work while they’re sick,” said...

This study was mentioned by dr. Daniel Griffin in his clinical update podcast with This Week in Virology. The way he presented it sounded like GET, but he called it pacing. Professor Racaniello asked if this would result into the same problems as with in ME/CFS, where patients say exercise...

I agree. The best way to avoid Long Covid must be to avoid Covid. I wonder if excessive use of antivirals may have the same problems as with antibiotics? Can a virus mutate into becoming more resilient to antivirals?

Article by Katherine J. Wu on antiviral treatment to reduce chances of developing Long Covid The Atlantic: Trying to Stop Long COVID Before It Even Starts quote: For anyone who is newly infected, “we don’t have any interventions that are known to work,” says Akiko Iwasaki, an immunologist and...

RNZ Risk of debilitating illness from long Covid could grow - epidemiologist Michael Baker quote: "It basically results in a vast array of different symptoms," University of Otago epidemiologist Michael Baker told Morning Report on Tuesday. "Weakness and fatigue, neurological symptoms -...

I've never heard of this particular cognitive therapy before, but wonder if it might surface from the "Mind-Body Lab" where Wyller and LP coach Live Landmark are part of the team. This lab was started by psychology professor Silje Reme (behind a qualitative LP study and the one who also recently...

Information about a planned study from professor Wyller surfaced today. They are recruiting 310 adults to explore treatment with Mind-Body Reprocessing Therapy and nikotinamid ribosid. More about the study...

The Sydney Morning Herald ´We're all vulnerable': One in 10 people will end up with long COVID, new study says quotes: The report’s researchers believe there are significant similarities between long COVID and some chronic health conditions, such as myalgic encephalomyelitis/chronic fatigue...

Trial by Error by David Tuller After Last Year's Tub Talk, Here's an Interview-Clothed-for #MEAction's Podcast quote: ...here is my clothed interview with Jaime, #MEAction’s director of science and medical outreach, and Steven, the filmmaker who produces the organization’s videos–about my...

Nature reviews microbiology Long COVID: major findings, mechanisms and recommendations Abstract Long COVID is an often debilitating illness that occurs in at least 10% of severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) infections. More than 200 symptoms have been identified with...

Christine who recovered from ME after treatment for breast cancer raised money for research into ME at Haukeland University Hospital. She managed to raise 700 000 NOK (65 800 Euro, 58 000 Pound, 7080 USD). Nettavisen has written an article about the fundraising and have also interviewed Kari...

For me LDN has correlated with a slight improvement of cognitive issues. No revolution, I am not able to read long texts or to write much and I can still get completely confused quite often and memory is still awful. But after taking LDN I have been able to take some online classes. The courses...

just spotted this on twitter

If she hadn't blocked the whole ME community, I'm sure she'd get lots of help with this one. I see Alan Carson assist her though with: If you’re willing to be open minded i d be happy to take you through why many in neurosciences think this ... Maybe the problem is your use of dismissed...

Article today from TV2 about 36 year old Heidi Andresen who suffers from ME. For the last 13 years her ME has been quite stable, and she's been able to work part time and have a bit of social life as well. Then she deteriorated after the third dose of covid-19 vaccination. TV2 say they've been...