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  1. Kalliope

    What can PwME hope for in 2023?

    I'm rather curious on Avindra Nath's study based on the NIH in-house testing of ME-patients, including Brian Vastag. I believe it is to be published soon?
  2. Kalliope

    Blog: ME/CFS Skeptic: 2022: "Looking back at a year of ME/CFS research"

    That was an impressive writeup! Very well written and easy to understand. Thank you!
  3. Kalliope

    Compilation of ME articles in 2022

    November The Sydney Morning Herald We failed Australians with chronic fatigue. Will we do the same with long COVID? BMJ Long Covid - What can we learn about the cause and management from ME/CFS? Los Angeles Times How patients wrote ’the first textbook’ on long COVID Medscape ME/CFS and Long...
  4. Kalliope

    Compilation of ME articles in 2022

    August Medscape Treatments Explored to Ease Post-Viral Symptoms of ME/CFS and Long COVID Medscape Increasing Data Link ME/CFS, Long COVID, and Dysautonomia Medscape Clinicians Can Help People With Severe ME/CFS, Even Unseen wbur To solve the mystery of long COVID, researchers look to an older...
  5. Kalliope

    Compilation of ME articles in 2022

    April SRF Das Chronische Fatigue-Syndrome - ein Albtraum für Betroffene (The Chronic Fatigue Syndrome - a nightmare for sufferers) Göteborgs-Posten Benjamin blir sjuk av att ta en promenad (Benjamin becomes ill by taking a walk) Göteborgs-Posten Postcovid kan ge upprättelse till ME-sjuka (Post...
  6. Kalliope

    Compilation of ME articles in 2022

    Here's a compilation of the largest ME articles mentioned in the weekly news brief throughout the year. This is the fourth year in a row we've had such an overview. In 2019 it was 10 articles that made the list. In 2020 it was 46. In 2021 it was 99. This year it's 107. Last year there was a...
  7. Kalliope

    Self-Reported Long COVID and Its Association with the Presence of SARS-CoV-2 Antibodies in a Danish Cohort up to 12 Months after Infection 2022 Fogh

    This study is hitting the news big time today in Norway. I fear many will use it as an excuse to ridicule Long Covid. I thought antibodies could vain quickly, so if you can't detect them 12 months after an infection it doesn't necessarily mean there never was an infection? Here's an article...
  8. Kalliope

    Long Covid in the media and social media 2022

    Thanks for sharing, @ahimsa Just watched it and Dr. Koroshetz mentions ME very briefly towards the end: I would say that the key thing in doing small trials is that, as I mentioned before, sometimes you see a signal that looks like it's going above the noise, but when you increase the numbers...
  9. Kalliope

    Norway: Opinion piece on "Facts and myths about ME" by Reme, Flottorp and Wyller

    An excellent short opinion piece from Mark Vink from Nov. 26th: Dårlig underbygde beskyldninger om ME google translate: Poorly substantiated allegations about ME quote: I read with interest the article Facts and myths about ME by Silje Endresen Reme, Signe Flottorp and Vegard Bruun Bratholm...
  10. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Anne Kjersti Befring is associate professor of law at the Faculty of Law at the University of Oslo and also deputy chairman at the National Research Ethics Committees (NEM). She is interviewed today for the research news site forskning.no and in short asks some researchers to pull themselves...
  11. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    The debate continues here in Norway. Professor in psychology Jonas Kunst and psychologist Sidsel Fjelltun wrote an opinion piece a few days ago in Nettavisen criticising Flottorp and the LP study: Overraskende at forskere tviholder på slike utdaterte påstander google translate: It's surprising...
  12. Kalliope

    Norway: Article about ME seminar with security

    Patient advocate Nina E. Steinkopf did the digging the journalist who wrote about this seminar with security should have done. There seems to be no record of communication between the University and the police about this seminar. Professor Reme has said it's easy to document threats and...
  13. Kalliope

    Long Covid in the media and social media 2022

    Article about Long Covid in English from Finland. It says treatment is uncoordinated and doctors disagree with each other over what it is. YLE Over 21,000 cases of long Covid diagnosed in Finland Quote: There is, for example, a debate among doctors about whether it is an actual physical...
  14. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    I think "mission" is a good translation, perhaps "social mission" or "societal responsibility" could work too. Thank you for bringing these news to the forum @Midnattsol I'm angry too, but not very surprised and kind of glad that this has been brought out in the open. My guess it there's lots...
  15. Kalliope

    Thank you for the "News in Brief"

    This made my day, @DokaGirl , thank you! So glad that you find it useful. And a huge thanks to @Trish who came up with the idea, did it all by herself in the beginning and still does a major part. :emoji_bouquet:
  16. Kalliope

    Lectures from a seminar by the Norwegian ME Association with Lucinda Bateman, Jelstad, Caroline Kingdon, Schei/Sommerfelt and Ingrid G. Rekeland

    The Norwegian ME Association has shared lectures from a recent seminar: Lucinda Bateman: ME/CFS Clinical Coalition Guidelines: Informing Assessment and Management Jørgen Jelstad on the NICE guidelines (in Norwegian) Caroline Kingdon: What should implementation of the 2021 NICE Guideline mean...
  17. Kalliope

    News from Scandinavia

    Am a bit confused myself. The first proposition I believe is an answer to what the research project "TjenestenogMEg" has revealed, that case workers have been asked to be specifically thorough when patients with ME or with drug/alcohol addiction applies for disability benefits. The second...
  18. Kalliope

    News from Scandinavia

    New article from the Norwegian broadcaster NRK about 25 year old Aurora who suffers from severe ME and now has lived against her will in a care institution for old people for over nine months. Local politicians are now asking the municipality to do something. Her wish is to move back home and...
  19. Kalliope

    News from Scandinavia

    Yesterday there was a debate about ME in the Norwegian Parliament and these two propositions got a majority of votes (google translated): - The Parliament asks the Government to go review regulations and practice to ensure that CFS/ME sufferers right to equal treatment is safeguarded in view of...
  20. Kalliope

    Norway: Opinion piece on "Facts and myths about ME" by Reme, Flottorp and Wyller

    Two more contributions to the current ME debate in Aftenposten. One from Paul Garner who says Reme, Flottorp and Wyller's opinion piece was well received among British colleagues who are researching ME, and among clinicians. He therefore got worried when he read Tuller's misguided comment and...
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