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  1. Kalliope

    Norway: Opinion piece on "Facts and myths about ME" by Reme, Flottorp and Wyller

    @dave30th has received a response from Henrik Vogt google translation: ME: Recovery Norge's stories show that you can recover quote: Finally, Tuller writes that our stories are not suitable for supporting the claim that one can be "completely cured of ME with the help of cognitive...
  2. Kalliope

    Norway: Opinion piece on "Facts and myths about ME" by Reme, Flottorp and Wyller

    A huge thank you to @dave30th for writing a reply to this opinion piece. It was published yesterday on the newspaper's website: Tullprat om ME google translation: Nonsense about ME quote: In a debate article in Aftenposten on 26 October , three Norwegian researchers (Silje Endresen Reme, Signe...
  3. Kalliope

    Post-COVID-19-associated morbidity in children, adolescents, and adults... Roessler et al, 2022

    Center for Infectious Disease Research and Policy (CIDRAP) has an article about the study. It's worrying if the risk of Long Covid are nearly the same for children and adolescents as for adults. This doctor's response in the CIDRAP article wasn't very reassuring (my bold): Daniel Blatt, MD, a...
  4. Kalliope

    Post-COVID-19-associated morbidity in children, adolescents, and adults... Roessler et al, 2022

    Plos Medicine Post-COVID-19-associated morbidity in children, adolescents, and adults: A matched study including more than 157.000 individuals with COVID-19 in Germany - Roessler et al Abstract: Background Long-term health sequelae of the Coronavirus Disease 2019 (COVID-19) are a major public...
  5. Kalliope

    Discovering strengths in patients with medically unexplained symptoms – a focus group study with general practitioners 2022 Jøssang et al

    Recovery Norge has a list of professionals who are officially endorsing the organisation, and one of the authors of the study, Aase Aamland, is on the list. https://www.recoverynorge.org/om-oss-recovery-norge/fagfolk-om-recovery-norge/ In interviews and lectures she's been clear that she...
  6. Kalliope

    Norway - 2 comedy podcasters cause controversy by misrepresenting ME/CFS, October 2022

    Thank you for the summary, @rainy I've not had the stomach to listen to the podcast episodes
  7. Kalliope

    Norway: Article about ME seminar with security

    This got a response today from Ola Didrik Saugstad, Nina E. Steinkopf and Rolf Rønning titled: Recovery Norge is hindering better help to ME-sufferers Summary: They argue that Recovery Norge (RN) is legitimising actors that claim even severe ME can be cured with cognitive methods and LP. At the...
  8. Kalliope

    Norway: Article about ME seminar with security

    Leader of Recovery Norge, Henrik Vogt with two board members who are previous ME sufferers wrote an answer 28th October titled: There is no "Recovery Norge-movement". It's behind paywall, so here's a summary: They describe Recovery Norge as an organisation of people who have experienced...
  9. Kalliope

    New York Magazine - Intelligencer: Has Long Covid Always Existed, by Jeff Wise, November 2022

    I'm reading it now and doesn't look good. @dave30th , you are referred to as well: One of the loudest voices decrying the PACE trial was that of a Berkeley academic named David Tuller, who in 2015 wrote a three-part, 15,000-word post that found fault with its protocol. His main criticism was...
  10. Kalliope

    Long Covid in the media and social media 2022

    This is a very long article, and I haven't read it yet myself, but see names as Bateman and Garner in it. Intelligencer: Has Long COVID Always Existed? https://nymag.com/intelligencer/2022/11/is-long-covid-actually-chronic-fatigue-syndrome.html This post has been copied and following...
  11. Kalliope

    New York Magazine - Intelligencer: Has Long Covid Always Existed, by Jeff Wise, November 2022

    This post has been copied and the following discussion moved from: Long Covid in the media and social media 2022 This is a very long article, and I haven't read it yet myself, but see names as Bateman and Garner in it. Intelligencer: Has Long COVID Always Existed...
  12. Kalliope

    Norway: Article about ME seminar with security

    A follow up article from Morgenbladet. This time an interview with researcher Anne Kielland from the research project TjenesteogMEg who is looking into ME patients meeting with the health care services. Title and ingress: - When people don't take ME sufferers seriously, we have to put the foot...
  13. Kalliope

    Norway: Articles from TV2 about ME. Interviews with researchers as Fluge, Rekeland, Sommerfelt, Kielland and an interesting patient case

    Here's more summary of the Dagbladet article. Beware my translation may be imprecise: Title: TV2 journalist: Held fundraising hidden Ingress: The TV2-journalist did a feature about research he had participated in financing. - He obviously played a double part here - both as activist and...
  14. Kalliope

    Norway: Articles from TV2 about ME. Interviews with researchers as Fluge, Rekeland, Sommerfelt, Kielland and an interesting patient case

    Flottorp from the Norwegian Institute for Public Health is interviewed in the Dagbladet-article. She is also quoted today in a Morgenbladet-interview with Kielland, who researches ME patients' meeting with the Norwegian health system, where Flottorp is accusing the research project of being...
  15. Kalliope

    Norway: Articles from TV2 about ME. Interviews with researchers as Fluge, Rekeland, Sommerfelt, Kielland and an interesting patient case

    I agree with the correction with this as additional information. But want to emphasise that Schaatun never fundraised for the researchers or any specific research project, but for the Norwegian ME Association who then chose to allocate money to Haukeland. I worry some readers might misunderstand...
  16. Kalliope

    Norway: Articles from TV2 about ME. Interviews with researchers as Fluge, Rekeland, Sommerfelt, Kielland and an interesting patient case

    They are making it really uncomfortable to write about ME. In fact, Professor Reme did warn journalists from covering this field in the Morgenbladet-article about her needing security and police on standby during a seminar. :rolleyes: When they are so relentless on the scene, I do wonder...
  17. Kalliope

    Norway: Articles from TV2 about ME. Interviews with researchers as Fluge, Rekeland, Sommerfelt, Kielland and an interesting patient case

    Paal Schaatun, the journalist behind this recent series about ME for TV2, receives a backlash from the newspaper Dagbladet by journalists Jorun Gaarder and Silje Førsund. In 2018 TV2 showed a documentary Schaatun had made about ME and the research into ME at Haukeland university hospital. A...
  18. Kalliope

    Long Covid in the media and social media 2022

    They have a side bar titled "Wise choices" I wonder if they actually belive health care providers are fully up to date about PEM and exercise? Quote: How Can I Feel Less Tired? Healthy lifestyle changes may help you regain energy: Eat a healthy diet. Nutritious foods can give you energy to...
  19. Kalliope

    Long Covid in the media and social media 2022

    This was good, but behind a paywall for me. Dakota has provided on Twitter a link to the whole article:
  20. Kalliope

    Long Covid in the media and social media 2022

    Don't know if this is verified, but this Tweet says: A Chinese business consultant in a Ted-style talk justified zero-Covid policy by saying that in 10 years the West will be brought to its knees b/c long-Covid, which will decimate most of its labor force.
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