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  1. Kalliope

    Long Covid in the media and social media 2023

    I am so sorry to hear that. WHO is even more clear, (use mask, keep distance, stay at home when ill and so on) so I don't understand how we are able to ignore it all completely here :-( https://www.who.int/emergencies/diseases/novel-coronavirus-2019/advice-for-public
  2. Kalliope

    Long Covid in the media and social media 2023

    Ah, yes. And in another interview today (he's been busy) he says won't be bothered to test himself if he has symptoms. That's our top epidemiologist in our country, that is. :unsure:
  3. Kalliope

    nature medicine - Postacute sequelae of COVID-19 at 2 years, 2023, Bowe, Xie, Al-Aly

    Science News Health risks can persist at least 2 years after COVID-19, new data suggest quote: “When it comes to a symptom clinicians have never heard of before, like PEM, [health records don’t capture] the full picture,” says Jaime Seltzer, an expert on myalgic encephalomyelitis/chronic...
  4. Kalliope

    nature medicine - Postacute sequelae of COVID-19 at 2 years, 2023, Bowe, Xie, Al-Aly

    Fortune Long COVID. Shorter Life? New research reveals an arduous road to recovery quote According to a paper published today in Nature Medicine, the physical fallout from long COVID may last two years or longer–and it can take a toll on quality of life even for those whose initial cases...
  5. Kalliope

    nature medicine - Postacute sequelae of COVID-19 at 2 years, 2023, Bowe, Xie, Al-Aly

    CNN health Long Covid symptoms create a greater burden of disability than heart disease or cancer, new study shows Quote: ...long Covid creates a higher burden of disability than either heart disease or cancer, which cause about 52 and 50 DALYs for every 1,000 Americans, respectively...
  6. Kalliope

    nature medicine - Postacute sequelae of COVID-19 at 2 years, 2023, Bowe, Xie, Al-Aly

    Abstract Severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) infection can lead to postacute sequelae in multiple organ systems, but evidence is mostly limited to the first year postinfection. We built a cohort of 138,818 individuals with SARS-CoV-2 infection and 5,985,227 noninfected...
  7. Kalliope

    WASF3 disrupts mitochondrial respiration and may mediate exercise intolerance in myalgic encephalomyelitis/chronic fatigue syndrome, 2023 Hwang et al

    This article gave a great explanation of the study for a wider audience: Science Alert This Protein Could be Responsible For The Exhaustion in Chronic Fatigue Syndrome Quote: Baffling perhaps to medical doctors who have long dismissed ME/CFS, but not so much to researchers who have steadily...
  8. Kalliope

    A safe and effective micro‑choice based rehabilitation for patients with long COVID: results from a quasi‑experimental study 2023, Frisk et al

    The article has now been professionally translated into English: Science Norway Can long Covid be treated in three days? quote: During the three days, patients learn about COVID-19 and how it affects the body. “We combine teaching with a number of different types of physical training and...
  9. Kalliope

    WASF3 disrupts mitochondrial respiration and may mediate exercise intolerance in myalgic encephalomyelitis/chronic fatigue syndrome, 2023 Hwang et al

    Science A protein that disrupt cell's energy centers may be a culprit in chronic fatigue syndrome quote: “It’s extremely encouraging” to see this kind of detailed molecular approach applied to an understudied illness like ME/CFS, says Mady Hornig, a physician-scientist studying the condition at...
  10. Kalliope

    Long Covid in the media and social media 2023

    Medscape Children and Long COVID: How Many Are Affected? Children are at lower risk for contracting COVID and often experience milder symptoms. But the virus is now widespread, and a recent study found that around 16% of pediatric patients with COVID go on to develop symptoms that last more...
  11. Kalliope

    Core mitochondrial genes are down-regulated during SARS-CoV-2 infection of rodent and human hosts, 2023, Guarnieri et al.

    Eric Topol Long Covid: Mitochondria, the Big Miss, and Hope quote: This week there was news on Long Covid in two very different directions—emergence of strong data to support mitochondrial dysfunction as the basis for the condition in some people—and learning how the $1.15 billion allocation...
  12. Kalliope

    Core mitochondrial genes are down-regulated during SARS-CoV-2 infection of rodent and human hosts, 2023, Guarnieri et al.

    Simon Décary on Twitter: If I understand this paper right, this may be one of the most important piece of data to date to demonstrate how SARS-CoV-2 inhibits mitochondrial homeostasis, which could explain the pathophysiology of post-exertional malaise.
  13. Kalliope

    Core mitochondrial genes are down-regulated during SARS-CoV-2 infection of rodent and human hosts, 2023, Guarnieri et al.

    The study is briefly discussed in today's TWiV Clinical update with Dr. Daniel Griffin and Prof. Vincent Racaniello wonders if this finding may be relevant for other viruses too.
  14. Kalliope

    MElivet - Blog posts by Nina E. Steinkopf

    Nina E. Steinkopf has made a compilation of ME studies of bad quality and about how they are used to influence treatment offers. This made my blood boil. Poor quality of ME research Quote: Science on ME is misused. Research affects how ME patients are treated. Poor quality research leads to...
  15. Kalliope

    Blood tests for chronic fatigue syndrome: article

    Merged thread The article has interviews with Ron Davis, Maureen Hanson and Alain Moreau Quote: While there’s currently no simple biological marker for ME/CFS — patients’ routine laboratory tests generally fall within normal values — Hanson emphasized that patients with ME/CFS are...
  16. Kalliope

    The #longcovid revolution: A reflexive thematic analysis, by Turner et al, 2023

    Long Covid SOS: The #LongCovid revolution Analysing tweets from the very first by @elisaperego78 to recognition from @DrTedros after our conference with @WHO in August 2020, this article shows how the power of patient advocacy can bring about real change Tedros Adhanom Ghebreyesus: The voices...
  17. Kalliope

    The #longcovid revolution: A reflexive thematic analysis, by Turner et al, 2023

    Abstract Research has identified long COVID as the first virtual patient-made condition (Callard and Perego, 2021). It originated from Twitter users sharing their experiences using the hashtag #longcovid. Over the first two years of the pandemic, long COVID affected as many as 17 million people...
  18. Kalliope

    The plasma metabolome of long COVID-19 patients two years after infection, 2023, Yamille Lopez-Hernandez et al

    CIDRAP Long-COVID patients have altered metabolite levels 2 years after infection quote: "Mitochondrial dysfunction, redox state imbalance, impaired energy metabolism, and chronic immune dysregulation are likely to be the main hallmarks of long COVID even two years after acute COVID-19...
  19. Kalliope

    News from the USA, United States of America

    We discussed this back in May in the Long Covid social media thread when he had just shared the news about his Long Covid. But it was early days then since the acute infection, and he's said in his podcast that he is now fully recovered. So I'm unsure how precise it is to call it Long Covid even...
  20. Kalliope

    Long Covid in the media and social media 2023

    MarketWatch Meals skipped, lights shut off: Long COVID linked to severe financial strains, researchers say quote: One in 10 adults with long COVID say they stopped working because of their symptoms, according to an Urban Institute study based on a survey conducted late last year. Only about...
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