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Yes, you are right! Nina E. Steinkopf wrote the following blog post with correspondence from The Research Council of Norway (Forskningsrådet) setting a deadline for ethical approval by December 2022...

Tuller comments on Twitter: A whine of anguish from people confronting increasingly successful opposition to the ideological perspective they have been promoting for a long time. The arguments about patients and NICE ignoring the evidence are classic Freudian projections.

I read between the lines that they've tried to get an article published, but were asked to submit an opinion letter instead. ETA: But it's nicer to say that the editors invited them to write, and I already see LP coach Live Landmark refer to the comment as published in the Lancet (as if it was...

The tabloid newspaper Dagbladet has written an article about the Lancet comment. It's paywalled, so here are some translated quotes:: Title: Fear ME sufferers will lose important treatment Research director Signe Flottorp of The Norwegian Institute of Public Health believes the changes in the...

Statement on Twitter from the ME Association on the Lancet comment. And a comment from prof. Kunst reminding that it's not an editorial

Medscape Promising Leads to Crack Long COVID Discovered Quote: Other investigators are proposing "immune exhaustion" in long COVID because of similarities to chronic fatigue syndrome, Hornig said. "It should be 'all hands on deck' for research into long COVID," she said. "The number of...

This email from 2020 from Signe Flottorp, research director at The Norwegian Institute for Public Health, resurfaced today on Twitter. I had forgotten it. It's sent to Miek Jong, Head of Norway's National Research Center in Complementary and Alternative Medicine (NAFKAM). NAFKAM defined...

Yes please. Thank you!

The Lancet New NICE guideline on chronic fatigue syndrome: more ideology than science? Signe A. Flottorp, Kjetil Brurberg, Per Fink, Hans Knoop, Vegard B B Wyller Article is paywalled other than this text (references removed): The National Institute for Health and Care Excellence (NICE) in the...

Bloomberg What Experts Know About 'Long Covid' and Who Gets It quotes: Some researchers say the pandemic represents an emerging global crisis, potentially spurring a raft of long-term problems such as chronic fatigue syndrome, dementia, Parkinson’s disease, diabetes and kidney impairment. ...

Moved post Trial by Error by David Tuller My Exchange of Letters on Amygdala Retraining, That Undead Lightning Process Study quote: What I find perplexing—even more than the deficiencies of the study design–is that an ethics committee would approve a trial touting itself as investigating...

Copied post Trial by Error by David Tuller My Exchange of Letters on Amygdala Retraining, That Undead Lightning Process Study quote: What I find perplexing—even more than the deficiencies of the study design–is that an ethics committee would approve a trial touting itself as investigating...

MECFSnet Webinar - Columbia University, Center for Solutions for MECFS Description: In this webinar, Dr. Ian Lipkin and colleagues at the NIH-funded Collaborative Research Center at Columbia University provide an update on their research progress. Tweet from Center for Solutions for ME/CFS...

oh, that's wonderful! Great that they are finding their way into media articles!

JOSPT Lessons from Myalgic Encephalomyelitis/Chronic Fatigue Syndrome for Long COVID Part 2: Physiological Characteristics During Acute Exercise Are Abnormal in People With Postexertional Symptoms Excacerbation by Todd E. Davenport, Staci R. Stevens, Jared Stevens, Christopher R. Snell, J. Mark...

article from Germany from Tuesday, with several mentions of ME BR24 Unklar, ob Impfen bei Long Covid helfen kann google translation Unclear whether vaccination can help with Long Covid quote: Long Covid is the name of the syndrome, which is also little known to many doctors, although such...

Don't know if this is the right thread, but just noticed that a German article about Long Covid from Tuesday used same stock photo as a Norwegian article about a study on ME. It's of a young man in bed, covering his face with his arm, and with a wheel chair in the background. Rather good...

It's also weird that it's suddenly not any more a study on LP, but a psychological course with "components" of LP. I'm pretty sure nothing has changed substantially from the original version, so wonder what Phil Parker feels about his trademarked course being diluted to "components".

The research news site forskning.no has written an article about the LP study receiving new ethical approval Omstridt ME-studie ble etisk godkjent. Så ble den stoppet. Nå er studien godkjent igjen google translation: Controversial ME study was ethically approved. Then it was stopped. The study...

Nina E. Steinkopf is sharing more from the study application. It's not possible to google translate the text, so here's a hasty translation by me: "It's important to be aware of the existence of the "ME-society", an internet based society, which among other has been described by Olaug Lian...