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HHS and the Steven & Alexandra Cohen Foundation Announce $25 Million “LymeX” Innovation Accelerator – Largest Lyme Public-Private Partnership in History https://www.hhs.gov/about/news/2020/10/10/hhs-steven-alexandra-cohen-foundation-announce-25-million-lymex-innovation-accelerator.html Some...

Another reason is that MECFS never had a breakout viral campaign like ALS did. This raised over 100 million USD. https://www.cnn.com/2020/11/22/us/pat-quinn-als-ice-bucket-challenge-dead-trnd/index.html

https://immunology.sciencemag.org/content/5/53/eabc7191

Threads by Robert Phair and request to monitor thermoregulation. https://forums.phoenixrising.me/threads/a-community-thermoregulation-experiment.82096/ https://forums.phoenixrising.me/threads/thermoregulation-and-body-temperature.82073/page-2#post-2308614

I disagree with most of the above post. I had a real dramatic response that was more than a 10% improvement (went from moderate to mild) It was not a placebo response. I am noticing reduced response at about 3 months, suggesting tachyphlaxis. I think butydoc had a response at .1 mg—why should...

https://www.nature.com/articles/s41573-020-0082-8

For me I don't think it's a question of overdoing it, but rather that it just stopped working.

I think you are probably correct about drugs that work in the brain.

It seems like some of us are losing our response to Abilify. Same thing happened with antivirals— they worked great until they didn’t. So why does this happen with this disease but not so much with other diseases? Please don’t make me read a long research paper......

https://finance.yahoo.com/amphtml/news/eli-lillys-arthritis-drug-gets-034748143.html Eli Lilly's Arthritis Drug Gets Emergency Use Approval For Treatment Of COVID-19

@Jessie 107 How long have you been taking Abilify?

I've seen this claim before about trimipramine not affecting sleep stages, but haven't ever really seen good scientific data on this.

Some correspondence with Bergen... "There have been no further updates since the cyclophosphamide study was published in April this year (https://www.frontiersin.org/articles/10.3389/fmed.2020.00162/full). I cannot tell you which proportion of the patients are still in remission, as we have no...

Also posted the above in the sleep meds thread

Discussion about day-time dosing of melatonin by Robert Phair here https://forums.phoenixrising.me/threads/dramatic-improvement-in-mental-symptoms-from-melatonin-dosed-in-the-day.43606/page-2#post-2307414

OK, but the trade-off is that the patient misses out on the best sleeping pill. The benzodiazepines for sleep are mostly half-measures. I’ll bet you that the benzo drug manufacturers over-promoted benzodiazepines and over-hyped the dangers of barbiturates to capture market share. Also Valeant...

Ummm you forgot the gold standard. https://www.drugs.com/comments/secobarbital/ A perfect 10/10 rating. Physicians are so scared to prescribe this stuff, probably to the detriment of many patients. What is the status of barbiturates in the UK/EU? (E.g., very rarely prescribed, etc.)

Another example of a dopamine agonist/partial agonist helping with CFS symptoms

Why not? I have daytime fatigue and would like to not have it. However, I would prefer to see a trial of pitolisant (Wakix) which works by a completely different mechanism. Wakix is very expensive in the USA, but not as expensive in Europe. In general I support all non psychological clinical...

https://www.medpagetoday.com/blogs/vinay-prasad/89564?xid=nl_mpt_DHE_2020-11-10&eun=g1139006d0r&utm_source=Sailthru&utm_medium=email&utm_campaign=Daily Headlines Top Cat HeC 2020-11-10&utm_term=NL_Daily_DHE_dual-gmail-definition Op-Ed: More Science, Less Speculation on COVID Long-Haulers — We...