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Please send questions here to indicate that long haul Covid with neuro symptoms is MECFS at 4 or 6 months. Thank you. HQ@survivorcorps.com

Survivor Corps COVID Live Webinar Series: 2:00 - 2:30 PM EST Covid Conversation: #LongCovid Founder Diana Berrent will have a one on one discussion with Dr. Anthony Fauci , the nation’s leading expert on COVID-19. Topics: Long Haul Covid, Post-Covid Care and future of treatments for Survivors...

My question is why are you calling MECFS “long Covid” ?????

https://www.eventbrite.com/e/a-conversation-with-dr-anthony-fauci-md-registration-123280809219

https://forums.phoenixrising.me/threads/from-very-severe-to-moderate-in-two-months.81447/ Another positive Abilify account From very severe to moderate in two months

@Jonathan Edwards Any experience with baricitinib? I know you are not a fan of JAK inhibitors for ME/CFS, but might there be some potential for this drug to reduce glial activation? Thank you.

CNS penetration of potential anti-COVID-19 drugs https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7195609/

https://jneuroinflammation.biomedcentral.com/articles/10.1186/s12974-019-1565-6 https://en.wikipedia.org/wiki/Baricitinib

Merged thread Is Ron Davis’s ME/CFS Collaborative Research Center at Stanford Poised for a Breakthrough? https://www.healthrising.org/blog/2020/09/24/davis-collaborative-chronic-fatigue-research-center-stanford-breakthrough/ New Nanoneedle

Hi, No not planning to come of it now, but agree with your point about potential withdrawal issues. HLA risk alleles for ME/CFS discussed in threads below. I got tested to see if I had the risk alleles, and I don’t. Patients with risk alleles, especially the DQB1 allele had very high response...

Answers to questions. Can you please explain the biological significance of the quadratic transformation of the data? The quadratic transformation of data allows us to understand and interpret the connections between protein analytes and ME/CFS, since these connections are not linear. The...

Hello, I'm on approximately day 45 of a trial of aripiprazole (Abilify). I wanted to do a post around day 50 or so, but I am feeling the pressure to post based on the recent Abilify thread. I decided to try Abilify after hearing that Whitney was improving on it. I have progressive...

I’m having a good respond also—medium-level game changer. I was planning to post in a couple of days.

It is not a useful term--I am sure. I agree with @Jonathan Edwards here. And I've mentioned this on this forum before. Let's all try to avoid using the term Long Covid, as it will likely bring Long-term problems. If people who had Covid, haven't recovered and have the neurological symptoms...

From a recent email exchange with Robert Naviaux...some comments about the cause of MECFS. I posted the Lawson et al. paper here. https://www.s4me.info/threads/elevated-energy-production-in-chronic-fatigue-syndrome-patients-lawson-et-al-2016.16760/ Here is a link to the CFS page on his web...

elusive?? Great that she was able to write another book with MECFS.

Maybe someone on twitter could tweet at Janet Dafoe to indicate a couple recordings (not all) of presentations that patients would be interested in hearing, e.g. Mark and Ron Davis and Robert Phair.

Where are my Norwegians? Maybe they are participating by Zoom call, but not giving presentations?

https://jneuroinflammation.biomedcentral.com/articles/10.1186/s12974-020-01887-1

So where can I get a check-up on my right parahippocampal gyrus, right precuneus, and juxtacortical white matter?