Search results

  1. J

    Long Covid in the media and social media 2023

    Junior got suspended from Twitter—perhaps for making comments about Natalie Shure. His account was helpful in putting out info on the latest LC clinical trials.
  2. J

    Long Covid in the media and social media 2023

    Here’s a six hour LC program from Barbarian’s group. LC and Society.
  3. J

    News from Germany

  4. J

    News from Germany

    Not sure if this will be in German or English.
  5. J

    How Chronic Fatigue Syndrome Grounded a World-Class Climber—Outside

    One or two errors plus CCI and tethered cord—but OK https://www.outsideonline.com/outdoor-adventure/climbing/mason-earle-chronic-fatigue-syndrome/
  6. J

    Long Covid in the media and social media 2023

    Merged thread The Pandemic after the Pandemic: Long covid haunts millions of people—Washington Post Editorial https://wapo.st/3RLcbjDI’m “It’s time for all hands to be engaged. The National Institutes of Health should take leadership by appointing a senior official to drive the science about...
  7. J

    Der Spiegel—Sucessful-ish? Treatment of a German MECFS patient

    Now it seems that there another program going on right now—not sure if it’s related the above one https://twitter.com/i/spaces/1lPKqBYpzNlGb
  8. J

    Der Spiegel—Sucessful-ish? Treatment of a German MECFS patient

    This seems to be a recording of a Twitter forum about Faraz and the article—any German speakers willing to have a listen? @Solstice Thanks https://twitter.com/i/spaces/1kvJpmqRNDwxE
  9. J

    Guanfacine program on twitter now

    Sorry—I fell asleep before the program ended—I’m guessing it lasted about 7 hours or so.
  10. J

    Der Spiegel—Sucessful-ish? Treatment of a German MECFS patient

    Slow reveal—the paper will be in German apparently—putting this here as place holder until they reveal the treatment in the next few days. I’m always skeptical of these slow reveal deals—might be scam-ish??
  11. J

    Guanfacine program on twitter now

    This program is still going on—closing in on five hours now. One person estimated that the guanfacine response rate might be 60-70%.
  12. J

    Guanfacine program on twitter now

    These folks have so much Long Covid fatigue that the show is now going on for four hours—still going.
  13. J

    Guanfacine program on twitter now

    This is still going on. The barbarian guy is a good interviewer—very methodical—but slow. Seems like responses to guanfacine are mixed.
  14. J

    Aripiprazole - Abilify

    No, I’m not on it currently. Was curious whether I had the risk alleles
  15. J

    Guanfacine program on twitter now

    I got to this late but he is interviewing people who are taking/took guanfacine.
  16. J

    Guanfacine program on twitter now

    On now longcovid lounge# Twitter space Host is @D_Bone
Back
Top Bottom