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You mean is there an underlying testable hypothesis? Did they previously test a fork theory hypothesis and it wasn’t significant?

Merged thread Spoon Theory—what it is and how I use it to manage chronic illness—WAPO https://wapo.st/3CSR3ll

SF questions reviews—my commentary Q1&2 Fine Q3-12 PF Maybe not great Qs for mild/moderate patients Q13-16–Ok but as mentioned above the 4 week timeframe not good. Q17-20 MH (mental health) questions-so maybe not appropriate Q21-22 pain questions—ok but also 4 weeks Q23-vitality—good Q24-26 MH...

For me the ~10 or so physical function (PF) questions are pretty useless because i have no problems climbing a flight of stairs, lifting a bag, walking a bunch, etc. I score closer to a normie here. I think the ~4 vitality questions are probably useful for everyone with MECFS. In contrast to...

posting here because not an MECFS person obit—please move if needed. HH wrote several articles on MECFS. https://sciencebasedmedicine.org/we-are-saddened-to-announce-that-the-skepdoc-dr-harriet-hall-has-passed-away/ https://en.m.wikipedia.org/wiki/Harriet_Hall...

See comment above from @Helene Abilify at or below 2 mg/day seems to result in a dramatic improvement for many patients, with several returning to work and others becoming un-bed-bound. A few have also tried rexulti/vraylar and have reported that they also work. I don't know of anyone who has...

if you’re looking at drug repurposing for currently available approved drugs, better candidates would be low doses of the dopamine stabilizers/dopamine partial agonists. Abiliify, Rexulti (Brexpiprazole), vraylar (cariprazine), and possibly Piribedil. These drugs are likely to help patients to...

Another masterwork from Maes. This makes 85 publications for 2022. Don’t believe me? Check yourself. https://scholar.google.com/citations?view_op=list_works&hl=en&hl=en&user=1wzMZ7UAAAAJ&sortby=pubdate Plus all that travel between his 3 affiliations—Thailand, Bulgaria and Australia. Busy guy!

Merged thread TNR article—corrections/error letter—everyone can sign

UGH More bogus nonsense. What is needed are treatments, not “New paradigms”. https://www.thelancet.com/journals/lanres/article/PIIS2213-2600(22)00501-X/fulltext#%20

FWIW—Reviews of B*nilla per se are generally not great to concerning—do a search on PR for specifics.

USA focus. Some interesting comments...

https://bmjopen.bmj.com/content/bmjopen/11/5/e047993.full.pdf PI here Thomas Foltynie is from UCL. @Jonathan Edwards any chance you know him? If yes, I’m curious to know if they believe that exenatide in particular has positive neuro effects or whether they believe that all GLP1 agonists would...

There’s actually about 18 of these videos—I don’t know if you want to highlight these somehow @Trish @Hutan? https://m.youtube.com/@RECOVERcovid/videos

Merged thread Vascular Pathophysiology of Long Covid—research review

Thanks for posting this. I had no idea about using exenatide for Parkinson’s—Some speculation on mechanism here https://bmjopen.bmj.com/content/bmjopen/11/5/e047993.full.pdf

Link to published article Clinical experience with the α2A-adrenoceptor agonist, guanfacine, and N-acetylcysteine for the treatment of cognitive deficits in “Long-COVID19” https://www.sciencedirect.com/science/article/pii/S2667257X22001000

Merged thread Rep. Jamie Raskin announces he has ‘serious but curable form of cancer’ USA Ugh Jamie Raskin has been a long time supporter of MECFS causes https://www.cnn.com/2022/12/28/politics/jamie-raskin-cancer/index.html E.g...