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When I read the title I thought "generation of pain" was a label like "millenial generation", and wondered which generation they were about to brand for complaining too much about pain.

Yes, me too.

Never noticed a difference with urine. Around and after onset 5-6 years ago my underarm sweat changed (very sudden strong-smelling bursts) but that seemed to resolved itself after a few months (thankfully, not good for the classroom). I mentioned it to my doctor at the time, he didn't say...

Why don't they come and post it here? Did they give you permission to paste it here? Is this a source you can cite with a reference at least? I'm not sure gathering hearsay perspectives is that helpful.

manslaughter isn't.

What on earth must you think of us? Welcome to the forum and thank-you for your account :).

Well now one person has shown me a thread where my post containing the phrase "mass hysteria" has been completely misrepresented. That twitter thread is a view of medicine from a political science perspective, with a bit of amateur psychology, discussion of motives and character of those asking...

https://www.bbc.com/news/health-50409431

We discussed Amy Proal's work here: https://www.s4me.info/threads/hypothesis-piece-by-amy-proal-a-microbiologist-with-me-cfs.134/

His modesty is entirely false. Self-deprecation is one of his favoured manipulative devices.

Top quality pun @Wonko - much appreciated :)

Rather different to how the Norwegians behaved when M.E. sufferers who were given rituximab started improving. They warned everyone not to try it at home and told doctors not to prescribe it for M.E. until the trials were complete, which took a couple of years. I don't remember them trumpeting...

Says they've treated 15 patients who have improved and they're going to do a clinical study (I think, my Spanish is rusty).

That's a really interesting way of looking at it - at least under the NHS we get abused for free without having to pay for it. I shall learn to count my blessings.

I agree. But making a perfectly reasonable general statement whilst in practice ignoring all the caveats and limitations she should be observing is what concerns me.

Just in case anyone thought I was taking a gratuitous cheap shot there, I feel I should explain further. Here is JB's tweet: Which basically says: Even though I am two courses short of a master's, I married a clever husband so we don't need to argue about it. Not only is it ridiculous, but...

I haven't got a husband who teaches statistics at Princeton, so I guess that shuts me up.

If I may quote Jen Brea from her TED talk - “’I don’t know’ is a beautiful thing.” We have a situation here that an expensive and risky operation seems to lead to improvement in some M.E. sufferers. How, why, and what's going on, seems to be very much in the "I don't know" category at the...

Occupying a position on every side of the fence so that you'll always be right about something is a strategy I've seen before somewhere ...

Oh good, sounds like he's calling for Michael Sharpe to get off twitter so that patient-experts can carry on their good work without harrassment.