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  1. NelliePledge

    Vox article--Why your desk job is so damned exhausting (2019 update)

    Because using your brain needs a lot of energy
  2. NelliePledge

    Pacing - definitions and sources of information

    Well they are the main researchers. Isn’t it something that was generated by patients?
  3. NelliePledge

    BMJ blog: The language used to describe patient feedback has a detrimental influence on safety culture

    There used to be 3 practices covering my area 2 now as my old one has since closed down.
  4. NelliePledge

    BMJ blog: The language used to describe patient feedback has a detrimental influence on safety culture

    Nope it may not be that common but I found it very easy to change to another GP Practice. And within practices there are often several Drs available. I only changed because the practice was relying on locums and I had very poor experience with them. My current GP practice is well run and...
  5. NelliePledge

    Pacing - definitions and sources of information

    Thanks for flagging this @Hutan @phil_in_bristol i can confirm that this booklet along with AFME booklet about employment/guide for employers are what I based my approach to ME/CFS in the first 18 months from diagnosis rather than resting for several months/a year I went back to work on gradual...
  6. NelliePledge

    David Tuller: Trial By Error: HRA Report Does Not Vindicate PACE

    @Stewart i just assumed that the PACE authors would have been asked to comment on the points raised so would have been aware the letter was in the pipeline and maybe they were sent an advance copy which they then shared with SMC. In any event knowing the letter was coming they would have been...
  7. NelliePledge

    UK Health Research Authority defends PACE. Answer to MP's question, February 2019.

    Agreed and I guess if we say the AFME and MEA surveys are evdence of harm it’s difficult to then say there isn’t evidence that some people consider GET/CBT helped them.
  8. NelliePledge

    Trial By Error: And Another Prebuttal…

    No I didn’t take it that way
  9. NelliePledge

    UK House of Lords/ House of Commons - relevant people and questions

    So the round table on Fibro is much broader than the one offered by Steve Brine on ME training for GPs
  10. NelliePledge

    Trial By Error: And Another Prebuttal…

    Cheers @dave30th sorry for indulging in thinking out loud. :whistle:
  11. NelliePledge

    Trial By Error: And Another Prebuttal…

    i don’t understand the practicalities around press articles. If the journalist has finished it and it has been submitted to the editors is the timing of publication in the hands of the editors or does the journalist have any influence. Just wondering if it has been held back because they knew...
  12. NelliePledge

    Trial By Error: And Another Prebuttal…

    Thanks SL this gave me a belly laugh :thumbup:
  13. NelliePledge

    UK Health Research Authority defends PACE. Answer to MP's question, February 2019.

    Wondering if, having been a response to a single question during the hearing before the Select Committee last year where J Montgomery said he was unsighted on the topic, this letter is weak enough for the Select Committee to consider calling him back to discuss?
  14. NelliePledge

    Current Research Project: Understanding the neural mechanisms of fatigue & memory impairments in CFS/ME & Multiple Sclerosis using fMRI

    Yes very interesting I hope it won’t be a case of whitewashing studies based on old NICE deeming them to be under improved criteria - but I would bet money there will be an attempt from some quarters to do just that
  15. NelliePledge

    UK Health Research Authority defends PACE. Answer to MP's question, February 2019.

    Anyone else think SMC are trying to be clever by getting quote from a Prof from LSHTM
  16. NelliePledge

    Current Research Project: Understanding the neural mechanisms of fatigue & memory impairments in CFS/ME & Multiple Sclerosis using fMRI

    Seen a post elsewhere from someone who has participated in recent weeks/months seems like it is ongoing
  17. NelliePledge

    BMJ blog: The language used to describe patient feedback has a detrimental influence on safety culture

    Maybe it’s not even seen as a complaint maybe it’s put down to health anxiety or catastrophising through spending too much time researching on the internet and talking to others on patient forums
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